Support Groups

Support comes from all over. Often times, it is closer than you think. Here is our listing of groups, associations, and organizations that support pemphigus and pemphigoid patients and caregivers. If you have a group you would like listed here, please contact us.

Note: Information is a key factor in treating and living with any condition. However, every patient’s situation is unique. The IPPF reminds you that any information found on the internet or during presentations should be discussed with your own doctor or healthcare team to determine if it applies to your specific situation.

U.S. Support Groups

  • Boston, MA
  • California
  • Florida
  • Mid-Atlantic
  • Pacific Northwest
  • Tri-State/New York Area

Find upcoming meetings on our Events page.

For more information contact info@pemphigus.org or call 916-922-1298

International Organizations & Associations

Australia

Australasian Blistering Diseases Foundation

France

Association Pemphigus & Pemphigoide France 

Germany

Pemphigus und Pemphigoid Selbsthilfegruppe e.V.

Japan

Pemphigus/Pemphigoid Friends Association

The Netherlands

Netwerk Nederland Pemphigus en Pemfigoid 

India

Auto Immune Blistering Disease Foundation

Italy

Associazione Nazionale Pemfigo Pemfigoide Italy  

SOS Team Pemphigo- Pemfigoide

United Kingdom

PEM Friends