Patient Resources

English

The IPPF Guide to Pemphigus and Pemphigoid is a great document that explains about what our diseases are, how they are diagnosed, and common treatment options.

Spanish

The IPPF Guide to Pemphigus and Pemphigoid (Spanish translation).

French

The IPPF Guide to Pemphigus and Pemphigoid (French translation).

Patient checklist

The Patient Checklist is a great document that can help to organize information related to doctor appointments.

Wound care

Wound care

Mouth ulcers

Calcium and vitamin D

Osteoporosis and bone density scans

Cell and gene therapy

Coaches Corner: Sunscreen

Coaches Corner: Vitamin Supplements

IPPF General Information (Spanish)

How to optimize your nutrition in pemphigus disease

Find Disability Assistance Online

Biosimilars vs. Generics

Clinical trials and research terms

European Reference Network: Pemphigus Vulgaris AIBD Patient Journey

Biosimilars: What you Need to Know

PEMFriends UK Photo Library

Global Genes: Understanding and Navigating Medicare

Global Genes: Caring for Yourself and Your Children

Angel Flight NE

Multi-drug Pemphigus Protocol Research Article (Dr. Sergei Grando)

Global Genes Family Planning and Financial Considerations Toolkit

Understanding Biologics and Biosimilars

Global Genes: Career Opportunities and Employment Benefits

Access for Healthcare Professionals and Patients

Global Genes Make a Plan: How to Talk to Your Family

Global Genes Rare Disease Caregiver Resources