# IPPF

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## Sitemaps

- [XML Sitemap](https://www.pemphigus.org/sitemap.xml): Contains all public & indexable URLs for this website.

## Posts

- [Speaking Up for the IPPF Community at the 2026 Coalition of Skin Diseases Hill Day ](https://www.pemphigus.org/speaking-up-for-the-ippf-community-at-the-2026-coalition-of-skin-diseases-hill-day/): By Becky Strong There’s something that happens when you walk the halls of Congress and say, out loud,” I’m here because of the IPPF Community”. It’s equal parts nerve-wracking and clarifying. That’s exactly where I found myself this past May, representing the IPPF community at the 2026 Coalition of Skin Diseases Hill Day in Washington,
- [Finding Meaning in the Mess](https://www.pemphigus.org/finding-meaning-in-the-mess/): While pemphigus and pemphigoid bring their own challenges, they can also be an opportunity for growth, resilience, and connection.
- [Meet Ramesh Swamy, New IPPF Board Chair](https://www.pemphigus.org/meet-ramesh-swamy-new-ippf-board-chair/): The IPPF named Ramesh Swamy its new Board President. Swamy joined the board in 2018; as president he’ll now steer strategy, fundraising, and advocacy.
- [Handling Prednisone's Side Effects Naturally](https://www.pemphigus.org/handling-prednisones-side-effects-naturally-2/): by Janet Segall In order for patients with pemphigus and pemphigoid to get control of their disease, there are certain drugs that patients must take. Prednisone is the first drug of choice for treating these diseases. Immunosuppressive drugs are often given as well to help patients reduce the doses of corticosteroids (prednisone/prednisolone). Prednisone (prednisolone) is
- [Soothing the Skin You’re In: Practical Care for Pemphigus and Pemphigoid](https://www.pemphigus.org/soothing-the-skin-youre-in-practical-care-for-pemphigus-and-pemphigoid/): Living with pemphigus or pemphigoid means getting to know your body in a new way.
- [Know Your Triggers, Know Your Power](https://www.pemphigus.org/know-your-triggers-know-your-power/): Living with pemphigus or pemphigoid can feel unpredictable but identifying your personal triggers can make a big difference.
- [Be the Help You Once Needed: Volunteer with the IPPF](https://www.pemphigus.org/be-the-help-you-once-needed-volunteer-with-the-ippf/): Volunteering with the IPPF offers the chance to make a life-changing impact.
- [Travel Tips for People with Pemphigus or Pemphigoid](https://www.pemphigus.org/travel-tips-for-people-with-pemphigus-or-pemphigoid/): For many living with pemphigus and pemphigoid, travel can be a powerful reminder that life is still full of opportunities.
- [ Staying Connected, Even When It’s Hard](https://www.pemphigus.org/staying-connected-even-when-its-hard/): Staying connected - even in small ways - can have a big impact on your emotional well-being. If you are in a crisis or need immediate support, please don’t wait. Call or text the 988 Suicide & Crisis Lifeline at 988—available 24/7, free and confidential. If you or someone you know is in immediate danger, please call 911 or go to the nearest emergency room.
- [Mental Health with a Rare Disease](https://www.pemphigus.org/mental-health-with-a-rare-disease/): Living with a rare disease can bring a unique set of challenges, many of which extend far beyond the physical symptoms. If you are in a crisis or need immediate support, please don’t wait. Call or text the 988 Suicide & Crisis Lifeline at 988—available 24/7, free and confidential. If you or someone you know is in immediate danger, please call 911 or go to the nearest emergency room.
- [Your Relationships Matter: Let's Talk About Intimacy](https://www.pemphigus.org/your-relationships-matter-lets-talk-about-intimacy/): Living with pemphigus and pemphigoid comes with many challenges - some visible, and others deeply personal.
- [When You’re the Caregiver and a Patient](https://www.pemphigus.org/when-youre-the-caregiver-and-the-patient/): When both caring for someone and being the person receiving care, effective communication and a clear understanding of roles and needs are crucial.
- [Managing Work When You're Managing a Disease](https://www.pemphigus.org/managing-work-when-youre-managing-a-disease/): Whether you're working full-time, part-time, or from home, pemphigus or pemphigoid can make staying productive difficult.
- [Rest is Healing: Tips for Better Sleep](https://www.pemphigus.org/rest-is-healing-tips-for-better-sleep/): Disrupted sleep is common with chronic illness, especially with pemphigus and pemphigoid.
- [Finding Foods that Work for You When You Have Oral Lesions](https://www.pemphigus.org/finding-foods-that-work-for-you-when-you-have-oral-lesions/): Every bite matters in your healing journey.
- [Dupixent Approved for Bullous Pemphigoid](https://www.pemphigus.org/dupixent-approved-for-bullous-pemphigoid/): A Message from our Executive Director Dear IPPF Community, Today, I'm incredibly grateful to share the exciting news that the U.S. FDA has approved Dupixent (dupilumab) for the treatment of adult patients with bullous pemphigoid (BP)! As you may know, the IPPF has worked closely with our industry partners at Sanofi and Regeneron, government regulators, medical
- [Knowledge is Power: Understanding Pemphigus and Pemphigoid](https://www.pemphigus.org/knowledge-is-power-understanding-pemphigus-and-pemphigoid/): April 28, 2025 Navigating life with pemphigus or pemphigoid (P/P) can be a challenging journey, filled with uncertainty and questions. Whether you’re newly diagnosed or have been living with these rare autoimmune diseases for years, one thing remains constant: Knowledge is power. Understanding your condition, treatment options, and the latest research can empower you to
- [Dupixent Meets Endpoints in Phase 2/3 Bullous Pemphigoid Study](https://www.pemphigus.org/dupixent-meets-endpoints-in-phase-2-3-bullous-pemphigoid-study/): Dupixent is the first and only biologic to achieve significant improvements in disease remission and symptoms in bullous pemphigoid positive pivotal study September 11, 2024 Highlights: Study met the primary and all key secondary endpoints in adults with moderate-to-severe disease; five times more patients achieved sustained disease remission with Dupixent than placebo Dupixent is the
- [Understanding the Unmet Needs of the Pemphigus and Pemphigoid Community](https://www.pemphigus.org/understanding-the-unmet-needs-of-the-pemphigus-and-pemphigoid-community/): Understanding the Unmet Needs of the Pemphigus & Pemphigoid Community is a summary of the Externally-Led Patient-Focused Drug Development (EL-PFDD) Meeting on Pemphigus and Pemphigoid held on January 25, 2023.
- [Meet Our New President of the Board of Directors: Staci White](https://www.pemphigus.org/meet-our-new-board-of-directors-president-staci-white/): We are excited to announce that Staci White has been appointed as our new President of the Board of Directors. Staci has served as an IPPF Board member since 2020. She has also been active in the IPPF community for many years.
- [New Partnership with the Patient Access Network Foundation](https://www.pemphigus.org/new-partnership-with-the-patient-access-network-foundation/): The PAN Foundation and the IPPF announced they are launching a new partnership to help people living with pemphigus vulgaris, providing up to $6,600 per year in financial assistance and support services for patients and their caregivers or loved ones.
- [Biosimilars 101 for Pemphigus and Pemphigoid Patients](https://www.pemphigus.org/biosimilars-101-for-pemphigus-and-pemphigoid-patients/): The latest video in our Pass the Mic with Dr. Mike, the Pharmacist series is available.
- [The IPPF Guide to Pemphigus and Pemphigoid](https://www.pemphigus.org/ippf-guide/): The IPPF Guide to Pemphigus and Pemphigoid is intended to provide medically reviewed information relevant to the most common questions people have when first diagnosed with pemphigus and pemphigoid
- [WesternU and Quest for Health Equity Collaborate to Support Biopsies Save Lives](https://www.pemphigus.org/westernu-and-quest-for-health-equity-collaborate-to-support-biopsies-save-lives/): Free diagnostic testing for pemphigus and pemphigoid patients in Southern California through WesternU and Quest for Health Equity program.
- [The Economics of Patient Assistance Programs: What Patients Need to Know](https://www.pemphigus.org/the-economics-of-patient-assistance-programs-what-patients-need-to-know/): The latest video in our Pass the Mic with Dr. Mike, the Pharmacist series is available.
- [Healing Hero Spotlight: Donna Culton](https://www.pemphigus.org/healing-hero-spotlight-donna-culton/): I became a Healing Hero because I wanted to give back to the IPPF.
- [Healing Hero Spotlight: Jesse](https://www.pemphigus.org/healing-hero-spotlight-jesse/): Healing Heroes are at the heart of our community. Join Jesse and become a Healing Hero today.
- [Healing Hero Spotlight: Toby](https://www.pemphigus.org/healing-hero-spotlight-toby/): Join Toby and become a Healing Hero.
- [Healing Hero Spotlight: Sally](https://www.pemphigus.org/healing-hero-spotlight-sally/): I became a Healing Hero because I wanted to give back to the IPPF.
- [Information for Pemphigus and Pemphigoid Patients Related to COVID-19](https://www.pemphigus.org/information-for-pemphigus-and-pemphigoid-patients-related-to-coronavirus-disease-covid-19/): IPPF Medical Advisory Council Statement: COVID-19 Update (Updated November 16, 2021) Pemphigus and pemphigoid patients are recommended to receive an additional shot of the COVID-19 vaccine. Specific recommendations can vary based on whether or not you are currently taking immunosuppressive medications, described further below. Why did the CDC recommend booster vaccines for immunosuppressed individuals as
- [Unite our Global Community: Rob's Story](https://www.pemphigus.org/unite-our-global-community-robs-story/): Unite our global community to support the IPPF.
- [Unite our Global Community: Maria's Story](https://www.pemphigus.org/unite-our-global-community-marias-story/): Unite our global community to support the IPPF.
- [Unite our Global Community: Janet's Story](https://www.pemphigus.org/unite-our-global-community-janet/): Unite our global community to support the IPPF.
- [Unite our Global Community: Lee's Story](https://www.pemphigus.org/unite-our-global-community-lees-story/): Unite our global community to support the IPPF.
- [Unite our Global Community: Mei Ling's Story](https://www.pemphigus.org/unite-our-global-community-mei-lings-story/): Unite our global community to support the IPPF.
- [The Pharmacist's Role in Managing Autoimmune Blistering Disease Patients' Medication Needs](https://www.pemphigus.org/pass-the-mic-video1/): The first video in our new series, Pass the Mic with Dr. Mike the Pharmacist is available.
- [Unite our Global Community Today and Every Day](https://www.pemphigus.org/unite-our-global-community-this-giving-tuesday/): Unite our global community to support the IPPF this Giving Tuesday.
- [Unite our Global Community on Giving Tuesday](https://www.pemphigus.org/unite-our-global-community-on-giving-tuesday/): Join us in uniting our global community for Giving Tuesday on November 29.
- [Women's Dermatological Society Features the IPPF in Editorial Highlight](https://www.pemphigus.org/womens-dermatological-society-features-the-ippf-in-editorial-highlight/): IPPF editorial highlight with the Women's Dermatological Society features the importance of physician/patient engagement with patient foundations.
- [KSL Beutner Laboratories Launches First Blood Test for Chronic, Debilitating Autoimmune Disease](https://www.pemphigus.org/ksl-beutner-laboratories-launches-first-blood-test-for-chronic-debilitating-autoimmune-disease/): Akari Therapeutics recently announced positive results from the Phase II study of investigational nomacopan in bullous pemphigoid (BP) were published online in the Journal of the American Medical Association (JAMA) Dermatology.
- [The IPPF Joins Newly Launched Global Dermatology Coalition](https://www.pemphigus.org/ippf-joins-newly-launched-global-dermatology-coalition/): The Global Dermatology Coalition, a patient-led, multi-stakeholder group of organizations, has launched during the 75th World Health Assembly in Geneva.
- [Role of the IPPF During the COVID-19 Pandemic](https://www.pemphigus.org/role-of-the-ippf-during-the-covid-19-pandemic/): The following Letter to the Editor was published in the Journal of the European Academy of Dermatology and Venereology on April 25, 2022 about the role of the IPPF during the COVID-19 pandemic. Pemphigus and pemphigoid are rare and potentially life-threatening chronic inflammatory autoimmune blistering disorders (AIBDs) that require special guidance by experienced dermatologists during
- [Akari Therapeutics Announces Publication of Phase II Data of Nomacopan for Bullous Pemphigoid Treatment](https://www.pemphigus.org/akari-therapeutics-announces-publication-of-phase-ii-data-of-nomacopan-bullous-pemphigoid-treatment/): Akari Therapeutics recently announced positive results from the Phase II study of investigational nomacopan in bullous pemphigoid (BP) were published online in the Journal of the American Medical Association (JAMA) Dermatology.
- [COVID-19 Vaccine Acceptance and Hesitancy in Patients with Autoimmune Bullous Diseases](https://www.pemphigus.org/covid-19-vaccine-acceptance-and-hesitancy-in-patients-with-autoimmune-bullous-diseases/): The following was published as a Letter to the Editor in the British Journal of Dermatology in November, 2021. The letter outlines a cross-sectional study of COVID-19 vaccine acceptance and hesitancy in patients with autoimmune bullous diseases. Out of the 707 total participants, 73.1% reported a willingness to accept the COVID-19 vaccination. Patients with autoimmune
- [Rare Disease Day and Rare Disease Week: 2022](https://www.pemphigus.org/rare-disease-day-and-rare-disease-week-2022/): We are rare, we are many, we are strong, we are proud! The purpose of Rare Disease Day® is to harness the creative energy of the millions of people around the world with rare diseases — and the millions who care about them — to raise awareness and generate action. Join the IPPF and get
- [The IPPF Announces a New Executive Director](https://www.pemphigus.org/the-ippf-announces-a-new-executive-director/): I am pleased to announce Patrick Dunn as our newest Executive Director.
- [IPPF 2021 Year in Review](https://www.pemphigus.org/ippf-2021-year-in-review/): We are happy to report that the IPPF had another great year in 2021. The infographic below highlights key areas in which we continue to work for all people affected by pemphigus and pemphigoid. Despite the ongoing challenges of a global pandemic, we are optimistic about the future as we grow our efforts in patient
- [Hannah Yale wins 2021 RareVoice Award](https://www.pemphigus.org/hannah-yale-wins-2021-rarevoice-award/): The IPPF is thrilled to share that Hannah Yale won the 2021 RareVoice award for State Advocacy by a Teenager, which honors teens who have advocated for state or federal legislation.
- [IPPF Awarded Operational Grant from the Chan Zuckerberg Initiative](https://www.pemphigus.org/ippf-awarded-operational-grant-from-the-chan-zuckerberg-initiative/): The IPPF is grateful to share that we have received a one-time, $50,000 grant from the Chan Zuckerberg Initiative in support of accelerating research and finding treatments and cures for pemphigus and pemphigoid.
- [Connecting at the 2021 IPPF Virtual Patient Education Conference](https://www.pemphigus.org/connecting-at-the-2021-ippf-virtual-patient-education-conference/): The willingness to help one another, even through a computer screen, will always be a silver lining I will remember from the COVID-19 pandemic. We can’t wait until we can all be together in person again, but until that day, the IPPF is here for you.
- [IPPF's Marc Yale Named President of GlobalSkin Board of Directors](https://www.pemphigus.org/ippfs-marc-yale-named-president-of-globalskin-board-of-directors/): We're excited to share that last month, the IPPF's Marc Yale was named as President of the Board of Directors of GlobalSkin. Marc is the current IPPF Research and Advocacy Coordinator, and he was the IPPF Executive Director from 2016-2020.
- [2021 IPPF Scientific Symposium](https://www.pemphigus.org/2021-ippf-scientific-symposium/): The 2021 IPPF Scientific Symposium (September 19-21) featured three days of live sessions and abstract discussions. The event, held in cooperation with the Pegasus Project and Phillips University in Marburg, Germany, was a tremendous success.
- [Oral Health and Rare Disorders: NORD Webinar Recording](https://www.pemphigus.org/oral-health-and-rare-disorders-webinar/): Last month, the National Organization for Rare Disorders (NORD) hosted a webinar featuring IPPF Medical Advisory Council Member, Dr. Yoshiyuki Mochida, and IPPF Outreach Director, Becky Strong.
- [The IPPF Welcomes New Members to its Board of Directors](https://www.pemphigus.org/the-ippf-welcomes-new-members-to-its-board-of-directors/): The IPPF Board of Directors and staff members are excited to welcome three new board members, Carolyn Fota, Laurence Gallu, and Michael Rigas, to the IPPF community.
- [Nomacopan Receives FDA Fast Track Designation for Bullous Pemphigoid](https://www.pemphigus.org/nomacopan-receives-fda-fast-track-designation-for-bullous-pemphigoid/): On April 23, 2019, Akari Therapeutics, Plc (Nasdaq: AKTX), a biopharmaceutical company focused on innovative therapeutics to treat orphan autoimmune and inflammatory diseases where the complement and/or leukotriene systems are implicated, announced positive initial Phase II clinical data from the first three of bullous pemphigoid (BP) patients in an ongoing clinical trial.
- [FDA Listening Session on Pemphigus and Pemphigoid](https://www.pemphigus.org/fda-listening-session-on-pemphigus-and-pemphigoid/): On February 8, 2021, the US Food and Drug Administration (FDA) held a Listening Session with patients representing the International Pemphigus & Pemphigoid Foundation (IPPF). Patient Listening Sessions are intended to be an opportunity for the FDA’s medical product centers to engage with patients and their advocates. The IPPF session was patient-led, meaning that the IPPF requested and received the permission to share its members’ perspectives with the FDA.
- [Public Statement: Medicaid and CHIP Payment and Access Commission (MACPAC)](https://www.pemphigus.org/public-statement-medicaid-and-chip-payment-and-access-commission/): On April 8, 2021, IPPF Advocacy & Research Coordinator, Marc Yale, issued a statement during the Medicaid and CHIP Payment and Access Commission public meeting.
- [COVID-19 Pandemic and Autoimmune Bullous Diseases](https://www.pemphigus.org/covid-19-pandemic-and-autoimmune-bullous-diseases/): The results of our survey are published in ​​​the Journal of The European Academy of Dermatology and Venereology: COVID-19 Pandemic and Autoimmune Bullous Diseases
- [The Urgent Needs of Pemphigus Patients: Elevating Awareness](https://www.pemphigus.org/the-urgent-needs-of-pemphigus-patients-elevating-awareness/): The IPPF has published a white paper focusing on the urgent needs of pemphigus patients.
- [Statement Regarding Anti-Asian Racism and Healthcare Inequities](https://www.pemphigus.org/statement-regarding-anti-asian-racism-and-healthcare-inequities/): March 25, 2021One of the most important functions of the IPPF is to distill scientific language related to rare diseases into clear information for patients, caregivers, and the general public. In this work, the words we use matter, and we choose them carefully. As the entire world has struggled with the repercussions of a global
- [NORD Statement about the American Rescue Plan](https://www.pemphigus.org/nord-statement-about-the-american-rescue-plan/): The National Organization for Rare Disorders (NORD) Rare Action Network released a statement about how the American Rescue Plan impacts the rare disease community.
- [Rare Disease Day and Rare Across America: 2021](https://www.pemphigus.org/rare-disease-day-and-rare-across-america-2021/): We are rare, we are many, we are strong, we are proud! The purpose of Rare Disease Day® is to harness the creative energy of the millions of people around the world with rare diseases — and the millions who care about them — to raise awareness and generate action. Join the IPPF and get
- [Patient-initiated Dermatology Research Needs Pemphigus and Pemphigoid Participants](https://www.pemphigus.org/patient-initiated-dermatology-research-needs-pemphigus-and-pemphigoid-participants/): The International Alliance of Dermatology Patient Organizations (also known as GlobalSkin) is inviting pemphigus and pemphigoid patients to participate in a unique research project. The IPPF is a proud member of GlobalSkin, and we are excited about this opportunity.
- [Janet Segall: Foundation of Hope](https://www.pemphigus.org/janet-segall-foundation-of-hope/): I'm in awe of the wonderful people who have worked so hard to make this organization into what I dreamed about.
- [David Baron: Diagnosis and Hope](https://www.pemphigus.org/david-baron-diagnosis-and-hope/): Any time I’ve needed help, the IPPF has been there for me.
- [Hannah Yale: Empowerment through Community](https://www.pemphigus.org/hannah-yale-empowerment-through-community/): Empowerment through community: I have often felt powerless when my dad has been sick. Three years ago though, I learned that I am not powerless to help him.
- [Inspiring Hope: Ellen's Story](https://www.pemphigus.org/inspiring-hope-ellens-story/): Thanks to modern medicine, great physicians, and the IPPF, I’ve learned to live confidently and successfully with a rare and chronic condition.
- [Inspiring Hope: Noel's Story](https://www.pemphigus.org/inspiring-hope-noels-story/): The articles on the IPPF website became my daily religion. I started reading them routinely and sharing them with other PV patients in Kenya.
- [The IPPF Welcomes a New Executive Director](https://www.pemphigus.org/the-ippf-welcomes-a-new-executive-director/): “I am delighted to join the Foundation. It is clear that the team of staff, Board of Directors, and volunteers have built a responsive and dynamic organization. I look forward to being a part of the next chapter for the IPPF and to "meeting" many of you at the upcoming Virtual Patient Education Conference.” -Kevin Mead
- [Rituximab to be Included in Taiwan's National Health Insurance (NHI) Program to Treat Pemphigus Vulgaris](https://www.pemphigus.org/rituximab-to-be-included-in-taiwans-national-health-insurance-nhi-program-to-treat-pemphigus-vulgaris/): Several new drugs used to treat different types of cancer are to be included in the national health insurance (NHI) program for the first time later this year, a government agency said on Tuesday, September 8. In a press release, the National Health Insurance Administration (NHIA) announced that following an Aug. 20 meeting, it was
- [Mei Ling's Story (Patient Journey Series #3)](https://www.pemphigus.org/mei-lings-story-patient-journey-series-3/): I remember what it was like for me when I was first diagnosed with PV, so I can empathize with the patients who contact the IPPF.
- [Raising Pemphigus and Pemphigoid Awareness](https://www.pemphigus.org/raising-pemphigus-and-pemphigoid-awareness/): On the last day of February millions of people around the world will observe Rare Disease Day. Get involved by visiting the U.S. (www.rarediseaseday.us) or global (www.rarediseaseday.org) Rare Disease Day website before February 29 to learn about events in your area and what you can do.
- [Minatallah Finds Her Role as a Dental Student (Patient Journey Series #7)](https://www.pemphigus.org/minatallah-finds-her-role-as-a-dental-student-2/): We were under the impression that dentists don’t actually play a role in these stories, we just refer them to a physician, right? Wrong.
- [How often should I change bandages?](https://www.pemphigus.org/how-often-should-i-change-bandages/): The area around a wound must be kept clean and reasonably moist. When the dressings are dirty, they need to be replaced promptly. Leaving bandages on too long can slow the healing process and encourage infection. Replace any dressing when fluids soak through. This is called bleed-through and ideally, bandages should be changed before this
- ["Coaches Corner" - Preparing for your Doctor Visit](https://www.pemphigus.org/coaches-corner-preparing-for-your-doctor-visit/): Preparing for your doctor’s appointment can help you get the most from your visit. Taking an active role in your care will make you an empowered patient. In addition, proactively learning about your disease will improve your healthcare and treatment experience. Collecting the information needed before a doctor’s appointment can ensure that you are organized
- [Welcome to PemPress](https://www.pemphigus.org/welcome-to-pempress/): The IPPF has maintained a "News and Information" section for many years. The launch of PemPress signals a new era in how we share information with our community. Our overarching goal is to increase public knowledge of the IPPF and our programs and services while providing P/P patients with information that improves their quality of life.
- [You-nique Ways to Raise Awareness](https://www.pemphigus.org/you-nique-ways-to-raise-awareness/): As a Patient Educator for the IPPF, I have the fantastic opportunity to travel around the country to different dental schools and give lectures on my journey with pemphigus vulgaris (PV). It’s an empowering experience to have a hundred people listen to my story at once. But it’s also important that the audience relates to me. I’m a person, not just a patient.
- [Awareness Update: Patient Educators](https://www.pemphigus.org/awareness-update-patient-educators/): Since Becky Strong gave the first IPPF Patient Educator presentation at the University of Michigan in March of 2014, she and Hannah Heinzig have presented to a combined 1,705 students, faculty, and staff at 12 schools.
- [Raising Awareness in DC and NY](https://www.pemphigus.org/raising-awareness-in-dc-and-ny/): Recently, the Awareness Campaign was an exhibitor at the American Dental Association’s (ADA) Annual Meeting in Washington, DC from 11/5-11/10 and the Greater New York Dental Meeting (GNYDM) from 11/29-12/2. Campaign staff and volunteers connected with over 600 dental professionals at each meeting, handing out brochures and post cards specifically designed to help these dental professionals recognize P/P symptoms.
- [My Time on Capitol Hill](https://www.pemphigus.org/my-time-on-capitol-hill/): When the email landed in my inbox last month asking for pemphigus and pemphigoid patients and caregivers to advocate on Capitol Hill, I didn’t hesitate.
- [Persistent Mouth Sores? Working with Your Oral Health Care Provider to Reach a Diagnosis](https://www.pemphigus.org/persistent-mouth-sores-working-with-your-oral-health-care-provider-to-reach-a-diagnosis/): If you suffer oral lesions, how can you partner with your dental health care provider to come up with a definitive diagnosis? A thorough review of your symptoms is critical. Make sure your dentist or dental hygienist listens carefully and asks detailed questions about your concerns, such as . . .
- [Rare Disease Week in Washington, DC](https://www.pemphigus.org/rare-disease-week-in-washington-dc/): The purpose of advocating in Washington, DC is to spread awareness and lobby for favorable legislation that affects the entire IPPF community. At Rare Disease Week on Capitol Hill 2016, we had 7 advocates from the IPPF community.
- [Missing Out On "Free" Money?](https://www.pemphigus.org/missing-out-on-free-money/): Over $10 billion in employer matching donations go unclaimed each year. The IPPF donation page allows you to search and see if your employer has a matching donation program.
- [Advocating for Change: Home Infusion Therapy](https://www.pemphigus.org/advocating-for-change-home-infusion-therapy/): As we shared our stories on behalf of the entire P/P community, I could see that many of the legislators’ offices we visited began to understand the dilemma. However, it was clear this issue would take an effort by the entire P/P community for our voices to be heard.
- [IPPF Awareness Campaign Receives Continued Funding from Sy Syms Foundation](https://www.pemphigus.org/ippf-awareness-campaign-receives-continued-funding-from-sy-syms-foundation/): The Sy Syms Foundation has awarded a $75,000 grant to the International Pemphigus & Pemphigoid Foundation (IPPF) in support of the IPPF’s Early Diagnosis Awareness Campaign. This will be the fourth consecutive year the Sy Syms Foundation has supported the Campaign.
- [Be Strong Enough to Take Care of Your Loved One](https://www.pemphigus.org/be-strong-enough-to-take-care-of-your-loved-one/): You have heard this message time and time again: It’s important for family caregivers to take care of their own health so they can stay strong enough to take care of their loved ones! But as a family caregiver, it’s difficult to find the time because caregiving takes so much work and energy. Being a family caregiver can be like having another full-time job.
- [The Long Road: A Pemphigoid Patient's Journey to Diagnosis](https://www.pemphigus.org/the-long-road-a-pemphigoid-patients-journey-to-diagnosis/): Sharon Williamson’s journey to a pemphigoid diagnosis started in July of 2014 when her mouth began to bleed whenever she brushed her teeth. Like many undiagnosed P/P patients, Sharon first shared her symptoms with her dentist. This dentist did not recognize Sharon’s symptoms and told her to floss more frequently.
- [Engineering the Immune System to Correct its Own Flaws: a Q&A with Dr. Aimee Payne](https://www.pemphigus.org/engineering-the-immune-system-to-correct-its-own-flaws-a-qa-with-dr-aimee-payne/): "This exciting aspect is why CAR-T cells were named by the director of the NIH and Vice President Joe Biden as part of the 'moonshot' to cure cancer – the word “cure” is potentially within our reach with this technology."
- [What to Expect at Our Annual Patient Conference](https://www.pemphigus.org/what-to-expect-at-our-annual-patient-conference/): This year’s conference promises to be one of our best yet as we are highlighting the most recent research advances in the fields of pemphigus and pemphigoid. Dr. Aimee Payne, a dermatologist at the University of Pennsylvania, will be our keynote speaker on Thursday night at the Annual Awards Dinner where she will share her perspective on pemphigus and pemphigoid research.
- [Rare Disease Patients Need 21st Century Cures Now](https://www.pemphigus.org/rare-disease-patients-need-21st-century-cures-now/): Although there has been a huge public outcry over the cost of prescription drugs, there has been little public discussion about the need for innovation for patients who don’t yet have an effective therapy. It is estimated that 1 in 10 Americans suffer from a rare disease, and only 5% of rare diseases have a treatment approved by the Food and Drug Administration (FDA).
- [Pemphigoid Gestationis: A Patient's Story](https://www.pemphigus.org/pemphigoid-gestationis-a-patients-story/): Pemphigoid Gestationis is a rare autoimmune blistering skin disorder that affects an estimated 1 in 40,000-50,000 pregnancies in the United States each year. United Kingdom figures put it at 1 in 1-2 million people. You could say that each of us is one in a million! No one wants this; most have said that they wouldn’t wish it on their worst enemy. This is my PG story.
- [IPPF Patient Educators by the Numbers: 2014-2016](https://www.pemphigus.org/ippf-patient-educators-by-the-numbers-2014-2016/): The end of the year is a great time to look back at our programs and assess the progress we've made toward reducing diagnostic delays of pemphigus and pemphigoid. Our patient educators continued to reach more and more dental students at schools across the country.
- [Battle Against Myself](https://www.pemphigus.org/battle-against-myself/): Last year was shaping up to be a very important year. I had just gotten an associate degree in journalism and was all set to transfer to a four-year university in the fall to pursue my B.A. On top of that, I turned 21 in February and was looking forward to savoring all the exciting things young adulthood had to offer. It was during this very same month that everything changed.
- [Rare Disease Day 2017](https://www.pemphigus.org/rare-disease-day-2017/): Rare Disease Day is a day of unity for us patients with rare diseases. I can’t speak for you, but I felt very alone and isolated when I found out I had pemphigus vulgaris. Then I found community in the IPPF. It was very comforting to know there were others out there who had gone through what I was living through. Now imagine being with hundreds of others who have a variety of rare diseases.
- [IPPF 2016 Year in Review](https://www.pemphigus.org/ippf-2016-year-in-review/): The IPPF had another great year in 2016. Here are a few highlights:
- [Mid-Atlantic Support Group Success](https://www.pemphigus.org/mid-atlantic-support-group-success/): On Saturday, February 4th, the Mid-Atlantic Support Group held its first meeting in Stafford, VA, with 10 new members attending. This meeting was supported by Vicky Starr and Diplomat Pharmacy. Carolyn Fota approached the IPPF last fall about starting a support group in her area. Her reason for wanting to start a support group was simple. “I feel so much was given to me through the IPPF -- it's the least that I can do. This illness that we share, although serious, doesn't have to be so isolating, scary and painful especially with a wonderful organization like the IPPF.”
- [Can't Grind Me Down](https://www.pemphigus.org/cant-grind-me-down/): My name is Rudy Soto. I am from the great state of Texas and have lived there all of my life. I am married to a wonderful woman, Jennifer, who is my greatest supporter. We have four awesome children—two girls and two boys who range in age from 5 to 23. My motto is Can't Grind Me Down, which I took on after I achieved remission in November of 2016.
- [Awareness Campaign Becomes a Program](https://www.pemphigus.org/awareness-campaign-becomes-a-program/): It started with a vision to make more people aware of pemphigus and pemphigoid (P/P). Those following the IPPF Awareness Campaign may know it was designed as a three-year initiative with January 2017 as a tentative end date. Well, January has come and gone, and the Awareness Campaign—or should I say, Program—is here to stay.
- [Dental Student Awareness: Boston University](https://www.pemphigus.org/dental-student-awareness-boston-university/): It wasn’t easy getting to this meeting. After a four-hour train ride, I decided to walk to my hotel, nearly two miles away. It was rush hour, days after a major snowstorm. Boston was cold, and the streets were crowded with traffic barely visible beyond mounds of blackened snow. The walk was neither refreshing nor picturesque; it ended with a gauntlet of addicts outside the methadone clinic near my hotel. No sooner did I arrive in my hotel room when the phone rang. He was early, and I was spent. Everyone has a story.
- [Finding Support: Tony's Story](https://www.pemphigus.org/finding-support-tonys-story/): In January 2013 my husband was diagnosed with prostate cancer. Thankfully, after surgery he was cancer free. But in May 2015 our whole world seemed to turn upside down when he came home with a very unusual sore in his mouth. Fearing the cancer had returned, Tony went to our family doctor and was immediately sent to an oral surgeon for a biopsy. He had the results within days, but the outbreak spread like wildfire.
- [The Importance of a WHOLEistic Point of View in Your Health](https://www.pemphigus.org/the-importance-of-a-wholeistic-point-of-view-in-your-health/): In a disease such as Pemphigoid, where the cause and pathogenesis is unclear and treatments are often trial-and-error, any “leg up” in dealing with the condition in my opinion should be enthusiastically explored.
- [Surgery and Pemphigus Foliaceus: Joe's Story](https://www.pemphigus.org/surgery-and-pemphigus-foliaceus-joes-story/): Having a rare autoimmune disease is scary. Once you receive a diagnosis by a dermatologist experienced in treating pemphigus, it’s advisable to have all of your doctors communicate with your dermatologist (Internist, OB-GYN, Dentist, Orthopedist and other specialists).
- [Resilience](https://www.pemphigus.org/resilience/): You don’t have to be a Navy SEAL, firefighter, or an NFL football player to be resilient. Resilience is a common trait that you can build upon by developing certain skills. Research has shown that while some people are naturally more resilient, these behaviors can also be learned. Here are some techniques to foster your own resilience.
- [IPPF 2017 Year in Review](https://www.pemphigus.org/ippf-2017-year-in-review/): We had a great 2017 with your help!
- [Advocating for Dental Research](https://www.pemphigus.org/advocating-for-dental-research/): The IPPF had the pleasure of interviewing Lindsey Horan, AADR’s Assistant Director of Government Affairs about their 2018 Advocacy Day and important legislative issues.
- [FDA Grants Priority Review For Genentech's Rituxan® (Rituximab) For Pemphigus Vulgaris](https://www.pemphigus.org/fda-grants-priority-review-for-genentechs-rituxan-rituximab-for-pemphigus-vulgaris/): Genentech recently announced an important FDA decision that could potentially impact future treatment options for pemphigus. Here at the IPPF, it's especially exciting when we get to share good news related to research and treatments. The full press release from Genentech can be found here. The following is an excerpt: The U.S. Food and Drug Administration
- [Strategies for Managing Pemphigus and Pemphigoid](https://www.pemphigus.org/strategies-for-managing-pemphigus-and-pemphigoid/): It can be difficult to accept the news of a lifelong chronic disease. It may be easier to understand the diagnosis of appendicitis when a procedure is needed, or medication to treat a cold, or the need to use crutches for a couple of months because of a broken bone. But accepting a disease like asthma, diabetes, lupus, pemphigus, or pemphigoid may be more difficult. Managing your life first begins with a strategy to live with your medical condition.
- [Rituxan Receives FDA Approval to Treat Pemphigus Vulgaris](https://www.pemphigus.org/rituxan-receives-fda-approval-to-treat-pemphigus-vulgaris/): On Thursday, June 7th, the FDA approved Rituxan for the treatment of adults with moderate to severe pemphigus vulgaris (PV). Rituxan is the first biologic therapy approved by the FDA for PV and the first major advancement in the treatment of PV in more than 60 years.
- [Self-Care: Comfort Techniques and Dressings](https://www.pemphigus.org/self-care-comfort-techniques-and-dressings/): Pemphigus and pemphigoid (P/P) patients may agree that in the early months of their condition it is a very painful and difficult time. However, the following suggestions may be helpful like learning how to care for our skin in terms of taking and applying topical medications, cleansers, moisturizers, dressings, and staying comfortable.
- [Bertilimumab Granted Orphan Drug Designation for the Treatment of Bullous Pemphigoid](https://www.pemphigus.org/bertilimumab-granted-orphan-drug-designation-for-the-treatment-of-bullous-pemphigoid/): The U.S. Food and Drug Administration (FDA) has granted Orphan Drug Designation to bertilimumab for the treatment of bullous pemphigoid.
- [The IPPF Receives Grant from Sy Syms Foundation to Reduce Diagnostic Delays](https://www.pemphigus.org/the-ippf-receives-grant-from-sy-syms-foundation-to-reduce-diagnostic-delays/): The Sy Syms Foundation has awarded a $75,000 grant to the International Pemphigus & Pemphigoid Foundation (IPPF) in support of the IPPF's Early Diagnosis Awareness Program. This will be the sixth consecutive year the Sy Syms Foundation has supported the Program.
- [Bertilimumab Granted Fast Track Designation for the Treatment of Bullous Pemphigoid](https://www.pemphigus.org/bertilimumab-granted-fast-track-designation-for-the-treatment-of-bullous-pemphigoid/): The U.S. Food and Drug Administration (FDA) has granted Fast Track Designation to bertilimumab for the treatment of bullous pemphigoid. The FDA’s Fast Track program is designed to facilitate the development and expedite the review of drugs to treat serious conditions that are unmet medical needs.
- [Aimee Payne and Nicola Mason Receive NIH Award](https://www.pemphigus.org/aimee-payne-and-nicola-mason-receive-nih-award/): Transformative Research Award Will Support Further Pemphigus Research Nicola J. Mason, BVetMed, PhD, associate professor of Medicine and Pathobiology at the School of Veterinary Medicine at the University of Pennsylvania, and Aimee S. Payne, MD, PhD, the Albert M. Kligman Associate Professor of Dermatology at the Perelman School of Medicine at the University of Pennsylvania,
- [Principia Biopharma Reports Positive PRN1008 Phase 2 Top-Line Results and Initiates Phase 3 Pemphigus Program](https://www.pemphigus.org/principia-biopharma-reports-positive-prn1008-phase-2-top-line-results-and-initiates-phase-3-pemphigus-program/): Principia Biopharma Inc. (Nasdaq: PRNB), a clinical-stage biopharmaceutical company dedicated to bringing transformative oral therapies to patients with significant unmet medical needs in immunology and oncology, today announced positive top-line data from the completed open-label Phase 2 trial of PRN1008 in patients with pemphigus (including both pemphigus vulgaris (PV) and pemphigus foliaceus (PF)) and the initiation of a Phase 3 trial of PRN1008 in pemphigus.
- [2018 Highlight: Patient Education Conference](https://www.pemphigus.org/2018-highlight-patient-education-conference/): The 2018 IPPF Patient Education Conference was an amazing opportunity for patients and their support systems to not only have direct access to IPPF staff, but also some of the leading minds who treat pemphigus and pemphigoid.
- [Syntimmune Announces FDA Orphan Drug Designation for SYNT001 in Treatment of Pemphigus](https://www.pemphigus.org/syntimmune-announces-fda-orphan-drug-designation-for-synt001-in-treatment-of-pemphigus/): On September 12, 2018, the U.S. Food and Drug Administration (FDA) granted an orphan drug designation to Syntimmune Inc.’s SYNT001 for the treatment of pemphigus.
- [A Look Back at UNC Dental Day 2018](https://www.pemphigus.org/a-look-back-at-unc-dental-day-2018/): On October 12, 2018, I participated in the IPPF Dental Day as part of the 2018 Patient Education Conference. Dental Day was hosted at the UNC Adams School of Dentistry by Drs. Donna Culton and Ricardo Padilla. As a dental student, I found this to be by far the most exciting and enriching experience of my dental school education to date.
- [Principia Biopharma Announces the Acceptance of Data from Phase 2 Pemphigus Vulgaris Trial as a Late-Breaking Presentation at 2019 American Academy of Dermatology Meeting](https://www.pemphigus.org/principia-biopharma-announces-the-acceptance-of-data-from-phase-2-pemphigus-vulgaris-trial-as-a-late-breaking-presentation-at-2019-american-academy-of-dermatology-meeting/): On February 22, 2019, Principia Biopharma Inc. (Nasdaq: PRNB), a late-stage biopharmaceutical company dedicated to bringing transformative oral therapies to patients with significant unmet medical needs in immunology and oncology, announced that an abstract has been accepted for oral presentation at the Late-Breaking Research during the 2019 American Academy of Dermatology annual meeting in Washington, D.C.
- [European Commission Approves Roche's MabThera (rituximab) for Pemphigus Vulgaris](https://www.pemphigus.org/european-commission-approves-roches-mabthera-rituximab-for-pemphigus-vulgaris/): On March 15, 2019, Roche announced that the European Commission has approved MabThera® (rituximab) for the treatment of adults with moderate to severe pemphigus vulgaris (PV), a rare condition characterised by progressive painful blistering of the skin and/or mucous membranes. Extensive blistering can lead to serious, life-threatening fluid loss, infection and/or death.
- [NORD and Trio Health Publish New Book to Provide Critical Patient Insights Into the Burden of Living With and Treating Rare Diseases](https://www.pemphigus.org/nord-and-trio-health-publish-new-book-to-provide-critical-patient-insights-into-the-burden-of-living-with-and-treating-rare-diseases/): As a NORD IAMRARE™ Registry Partner, the IPPF is proud to share that a new book, “The Power of Patients: Informing Our Understanding of Rare Diseases” was published today by the National Organization for Rare Disorders, Inc. (NORD) and Trio Health.
- [Rituxan Shown as Superior in Achieving Sustained PV Remission](https://www.pemphigus.org/rituxan-shown-as-superior-in-achieving-sustained-pv-remission/): Genentech announced this week that positive top line results from the Roche-sponsored Phase III PEMPHIX study evaluating the efficacy and safety of Rituxan® (rituximab) compared to mycophenolate mofetil (MMF) in adults with moderate to severe pemphigus vulgaris
- [The IPPF Receives Grant from Sy Syms Foundation to Accelerate Diagnosis Times](https://www.pemphigus.org/the-ippf-receives-grant-from-sy-syms-foundation-to-accelerate-diagnosis-times/): The Sy Syms Foundation has awarded a $100,000 grant to the International Pemphigus & Pemphigoid Foundation (IPPF) in support of the IPPF’s Biopsies Save Live Campaign.
- [Ellen Levine Receives Harvard Medical School Dean's Community Service Award](https://www.pemphigus.org/ellen-levine-receives-harvard-medical-school-deans-community-service-award/): The IPPF is excited to announce that Ellen Levine, IPPF Patient Educator and pemphigus vulgaris (PV) patient, received the Harvard Medical School Dean's Community Service Award for her work with the IPPF.
- [Halima's Diagnosis (Patient Journey Series #1)](https://www.pemphigus.org/halimas-diagnosis-patient-journey-series-1/): Welcome to the Patient Journey Series: Story 1, Halima's Diagnosis. "My symptoms started at the beginning of April 2018. My mouth was inflamed, and I had painful blisters on both sides that made it very difficult to eat or drink. I had no idea what was causing my symptoms, and I went to four different doctors."
- [Rudy Takes Control (Patient Journey Series #2)](https://www.pemphigus.org/rudys-connects-with-the-ippf-patient-journey-series-2/): Patient Journey Series, Story 2: Rudy Connects with the IPPF. "My Peer Health Coach became a special person that I was able to count on. She offered words of encouragement and let me know I was not alone—she would be with me on my journey to reach remission."
- [Kathleena Finds Strength as Both a Patient and a Doctor (Patient Journey Series #4)](https://www.pemphigus.org/kathleena-finds-strength-as-both-a-patient-and-a-doctor-patient-journey-series-4/): I had never told anyone except my close family that I had an autoimmune disease. I hid it away like a dirty secret because I was afraid of appearing weak or being treated differently. Especially as a student of medicine—we are supposed to treat patients, not be them.
- [Fred's Perspective: Connecting with Other Patients (Patient Journey Series #5)](https://www.pemphigus.org/freds-perspective-patient-journey-series-5/): Just spending time [at the Patient Education Conference] with people who knew exactly what I was going through, who knew the instantaneous fear and rage that goes along with each new lesion, who were discovering how to find the shady spots at high noon, was an amazing comfort.
- [Toby's Luck (Patient Journey Series #6)](https://www.pemphigus.org/tobys-luck-patient-journey-series-6/): Having excellent care and support (and even an infusion center) right here in my neighborhood gives me a sense of security and well-being, and I can trace that support directly back to the IPPF, who helped me find the way. Thank you, IPPF!
- [Linda's Still Standing (Patient Journey Series #8)](https://www.pemphigus.org/lindas-still-standing-journey-series-8/): The IPPF conference was the light and guide that walked us through a very dark tunnel. A tunnel we would’ve walked through alone. But everyone involved turned up the light nice and bright, and we found we were two of many. We were not alone and we would never feel alone again!
- [Pemphigus, Pemphigoid, and Social Security Disability](https://www.pemphigus.org/pemphigus-pemphigoid-and-social-security-disability/): If you cannot work enough to earn the SSA’s monthly Substantial Gainful Activity (SGA) limit of $1,130, then you may be eligible for Social Security Disability Insurance (SSDI). Generally, you need to have worked five of the last ten years in a job that pays into Social Security, and additional years depending on your age.
- [Orphan Diseases and the IPPF](https://www.pemphigus.org/orphan-diseases-and-the-ippf/): Chances are you have wondered why there are not more treatments available for pemphigus and pemphigoid, or at minimum, why there is not more research underway for these conditions. There are a few reasons for this, and unfortunately, it’s something that is not easily solved.
- [My Clinical Trial Experience](https://www.pemphigus.org/my-clinical-trial-experience/): Marlis Lippow was diagnosed with pemphigus vulgaris in February of 2014. She recently participated in a clinical study and shares her experiences here.
- [The Challenges of Dental Implants in P/P Patients](https://www.pemphigus.org/the-challenges-of-dental-implants-in-pp-patients/): The biggest problem with dental implants in pemphigus and pemphigoid (P/P) patients is that P/P are often treated with corticosteroids or other immune suppressants for prolonged periods of time.
- [Speak Up, Stand Up, Write Up, and Talk Up](https://www.pemphigus.org/speak-up-stand-up-write-up-and-talk-up/): When there was an opportunity to be an advocate, Marc suggested that I attend Rare Disease Week in Washington, DC. My first reaction was FEAR. The walking, my body aching, standing were just a few of my worries. EXCITEMENT was the next emotion. There would be stories that I could relate to and new people to meet, especially Marc Yale. Then I felt PROUD that I would represent Louisiana and get to meet the senators and representatives.
- [Join the IPPF to Ensure the Rare Disease Community is Heard This Summer](https://www.pemphigus.org/join-the-ippf-to-ensure-the-rare-disease-community-is-heard-this-summer/): During the summer recess, Congress returns to their home states to hear from constituents and attend community events. Meeting with them during this time is a critical opportunity for rare disease advocates to build relationships, educate them on key legislative needs, and follow-up on requests made during Rare Disease Week on Capitol Hill or phone calls or emails about legislative issues made since then.
- [Why Advocacy?](https://www.pemphigus.org/why-advocacy/): Since its inception, the IPPF has had a strong commitment to advocacy. Our goal has been to promote favorable government policies to create awareness and accelerate the pace of scientific discovery for pemphigus and pemphigoid.
- [Rally for Medical Research](https://www.pemphigus.org/rally-for-medical-research/): In addition to our general request for NIH funding, I stressed the importance of cutting edge research on rare diseases and emphasized the significance of the Open Act, which incentivizes pharmaceutical companies to make treatments available off-label.
- [Working Together to Expand Skin Disease Advocacy](https://www.pemphigus.org/working-together-to-expand-skin-disease-advocacy/): On September 26th Todd Kuh and Mariah Lowinske, two patient advocates with Pemphigus Vulgaris, and I attended the American Academy of Dermatology Legislative Conference in Washington DC. As a member of the Coalition of Skin Diseases, the IPPF sends advocates to this conference annually so we can learn about the latest initiatives prior to lobbying Congress for support for treatment and research.
- [What is #GivingTuesday?](https://www.pemphigus.org/what-is-givingtuesday/): Tuesday, December 1, 2015, is #GivingTuesday, a day the world will come together to support nonprofit organizations and their missions. #GivingTuesday has raised more than $80 million since it began in 2012, and this year the IPPF is participating.
- [Social Media and the Art of the Hashtag](https://www.pemphigus.org/social-media-and-the-art-of-the-hashtag/): The IPPF strives to do many things for the pemphigus and pemphigoid community, but our three biggest goals are to raise awareness, create a support network, and to increase education. One of the biggest tools that we have at our disposal to accomplish those goals is social media.
- [Advocating Close to Home](https://www.pemphigus.org/advocating-close-to-home/): I am neither brave nor eloquent with words but the knowledge that I could encourage the passage of bills to find cures or treatments for people all over the world was inspiring. I quickly found my courage and knew my purpose.
- [Happy Holidays!](https://www.pemphigus.org/happy-holidays/): As the holidays approach and 2015 draws to a close, the International Pemphigus and Pemphigoid Foundation has much to reflect upon -- and even more for which to be grateful!
- [Don't Let Stress Get the Best of You](https://www.pemphigus.org/dont-let-stress-get-the-best-of-you/): For those of you who have any one of the pemphigus/pemphigoid (P/P) related skin diseases, stress is the number one factor in flare-ups occurring. The mind-body connection is very strong and stress encourages the antibodies to act up and give you more blisters.
- [Contacting Your Congressional Members](https://www.pemphigus.org/contacting-your-congressional-members/): The First Amendment to the United States Constitution guarantees the right of all citizens to communicate with their elected officials. So you might be asking yourself, “Does my Congressional Representative really care what I think”? Well, the answer is YES!
- [Nutrition](https://www.pemphigus.org/nutrition/): Pemphigus and pemphigoid are very patient-specific diseases. Everyone's disease activity varies. Well, the same thing goes for diet and these diseases. The foods that negatively affect one person's disease activity may do nothing to another individual. It is about becoming an expert on you.
- [Raising Awareness at Dental Conferences](https://www.pemphigus.org/raising-awareness-at-dental-conferences/): Conferences are an excellent way for us to meet dental professionals and spread awareness of P/P and the IPPF. In November, we attended the American Dental Association’s Annual Meeting in Washington, DC. December found us at the Greater New York Dental Meeting in New York City, and in January we kicked off the new year at the Yankee Dental Congress in Boston.
- [Repurposing Drugs Matters with Rare Disease](https://www.pemphigus.org/repurposing-drugs-matters-with-rare-disease/): In November 2014, I used the chemotherapy drug Rituxan off-label for my rare disease, Immune Thrombocytopenia (ITP). The decision was made after careful consideration of all the possible outcomes. I was desperate for relief since ITP causes internal bleeding that can be fatal. This thought stayed in the back of my mind as I watched my platelets drop and my bleeding episodes increase in severity.
- [It's Natural](https://www.pemphigus.org/its-natural/): It's no secret among the pemphigus and pemphigoid (P/P) community that treatments to help these rare diseases are not always ideal. It's also common for patients and caregivers to reach out to the IPPF seeking advice on holistic/natural/eastern medicines to treat P/P before the typically used western medicines recommended by physicians.
- [The Rarest Day of Them All](https://www.pemphigus.org/the-rarest-day-of-them-all/): Monday, February 29, 2016, was "Leap Day," the rarest day of the year. But for the rare disease community, it was much, much more: it was International Rare Disease Day.
- [Where Does My IPPF Donation Go?](https://www.pemphigus.org/where-does-my-ippf-donation-go/): The IPPF appreciates the generosity of each and every dollar we receive, and we allocate donated funds in a responsible manner. After all, your generosity allows us to carry out our mission of improving the quality of life for all people affected by pemphigus and pemphigoid through early diagnosis and support.
- [A Letter from Marc Yale, Our New Executive Director](https://www.pemphigus.org/a-letter-from-marc-yale-our-new-executive-director/): While working as a Peer Health Coach, I’ve had the pleasure of speaking with many P/P patients. Creating those relationships has been so gratifying. I have also built and expanded programs that serve our community, and I’ve represented the organization at conferences, meetings, and in the halls of Congress. So far, my time with the IPPF has been rewarding to say the least. This is why I was so honored when the IPPF Board of Directors asked me to lead our foundation as Interim Executive Director.
- [Greetings from the New IPPF Outreach Manager: Becky Strong](https://www.pemphigus.org/greetings-from-the-new-ippf-outreach-manager-becky-strong/): Working for the IPPF has been something I have been interested in doing for about five years, since my pemphigus vulgaris finally got under control. I knew from my first contact with the Foundation that this is an amazing group of people. I am proud of the way our community pulls together and rallies for each other; it’s amazing how we sincerely care about one another.
- [Helping Break the Cycle of Stress, Depression, and Disease](https://www.pemphigus.org/helping-break-the-cycle-of-stress-depression-and-disease/): For pemphigus and pemphigoid patients, there are several events that can trigger stress and exacerbate disease activity, even simply being diagnosed with a rare disease. The time it takes to be diagnosed, the medication itself, and how it all affects our families and friends can trigger stress and depression.
- [2016 Patient Conference](https://www.pemphigus.org/2016-patient-conference/): The 2016 Patient Conference has already come and gone. It was an amazing experience for attendees and presenters alike. This year’s event focused on the importance of peer support and expert research, and there was a special emphasis on oral care. The conference was full of learning, laughs, and the formation of life-changing bonds.
- [International Pemphigus & Pemphigoid Foundation Announces Research Grant Program](https://www.pemphigus.org/international-pemphigus-pemphigoid-foundation-announces-research-grant-program/): The International Pemphigus and Pemphigoid Foundation (IPPF) is pleased to announce the availability of a seed grant program to encourage and support patient-oriented research of pemphigus and pemphigoid. The intent of these grants is to support well-defined research projects that have a specified benefit for improving the treatment, health, disease management, or diagnosis of persons with pemphigus and pemphigoid. Consideration will also be given to studies that contribute to the body of medical knowledge of pemphigus and pemphigoid.
- [In-District Lobby Days](https://www.pemphigus.org/in-district-lobby-days/): For the past four years, I have joined IPPF patients and others in the rare disease community across the country in advocating to congressional members in my district. The IPPF is joining forces again this year with Rare Disease Legislative Advocates (RDLA) for In-District Lobby Days from August 7, 2017 through September 6, 2017.
- [Syntimmune Announces Positive Preliminary Results from Clinical Proof-of-Concept Trial of SYNT001 in Pemphigus Vulgaris and Foliaceus](https://www.pemphigus.org/syntimmune-announces-positive-preliminary-results-from-clinical-proof-of-concept-trial-of-synt001-in-pemphigus-vulgaris-and-foliaceus/): Syntimmune recently announced positive preliminary results from its phase 1b proof-of-concept trial of SYNT001 in pemphigus vulgaris and foliaceus patients. It's exciting for the IPPF to share good news related to research and treatments. The full press release from Syntimmune can be found here. The following is an excerpt: Syntimmune, Inc., a clinical-stage biotechnology company
- [Breaking Bad: IgG4 in Autoimmunity](https://www.pemphigus.org/breaking-bad-igg4-in-autoimmunity/): Our laboratory researches a rare and debilitating autoantibody-mediated disease called pemphigus vulgaris, in which the immune system generates antibodies against desmogleins, which are proteins responsible for holding skin cells together.
- [IPPF 2018 Year in Review](https://www.pemphigus.org/ippf-2018-year-in-review/): 2018 was an exciting year for the IPPF!
- [Principia Biopharma Announces Positive Data From Phase 2 Pemphigus Vulgaris Trial at 2019 American Academy of Dermatology Annual Meeting in Late-Breaking Presentation](https://www.pemphigus.org/principia-biopharma-announces-positive-data-from-phase-2-pemphigus-vulgaris-trial-at-2019-american-academy-of-dermatology-annual-meeting-in-late-breaking-presentation/): On March 2, 2019, Principia Biopharma Inc. (Nasdaq: PRNB), a late-stage biopharmaceutical company dedicated to bringing transformative oral therapies to patients with significant unmet medical needs in immunology and oncology, today announced Phase 2 clinical data from the Believe-PV study for PRN1008 as part of the Late-breaking Research: Clinical Trials program at the American Academy of Dermatology (AAD) annual meeting in Washington D.C.
- [Akari Therapeutics Announces Positive Initial Phase II Clinical Data in Orphan Skin Disease Bullous Pemphigoid](https://www.pemphigus.org/akari-therapeutics-announces-positive-initial-phase-ii-clinical-data-in-orphan-skin-disease-bullous-pemphigoid/): On April 23, 2019, Akari Therapeutics, Plc (Nasdaq: AKTX), a biopharmaceutical company focused on innovative therapeutics to treat orphan autoimmune and inflammatory diseases where the complement and/or leukotriene systems are implicated, announced positive initial Phase II clinical data from the first three of bullous pemphigoid (BP) patients in an ongoing clinical trial.
- [Positive Proof-of-Concept Data for Efgartigimod in Pemphigus Vulgaris](https://www.pemphigus.org/positive-proof-of-concept-data-for-efgartigimod-in-pemphigus-vulgaris/): 23 patients were evaluated for efficacy in an adaptive Phase 2 trial aiming to establish optimal treatment regimen argenx, a clinical-stage biotechnology company developing a deep pipeline of differentiated antibody-based therapies for the treatment of severe autoimmune diseases and cancer, released a strategic outlook for 2020 outlining key priorities for its broad pipeline and path
- ["Coaches Corner" - Dealing With Insurance and Lab Work](https://www.pemphigus.org/coaches-corner-dealing-with-insurance-and-lab-work/): Dealing with insurance is not fun, especially when you’re in pain, and don’t know what the future holds. My experience has shown, that the first place to start when you have a problem is with your insurance company's customer service. What I have found, is that when I call customer service, I can get very
- ["Coaches Corner" - In Case of Emergency](https://www.pemphigus.org/in-case-of-emergency/): Even if you don’t have a medical condition, it’s always wise to have your medical information accessible ICE (In Case of Emergency). It’s a good idea to wear a medical alert bracelet or carry a medical ID with you, but since many people carry a cellphone at all times, it’s a great idea to use or install a health app.
- [The Importance of Rare Disease Education](https://www.pemphigus.org/the-importance-of-rare-disease-education/): This article was originally was posted at http://www.medscape.com/viewarticle/840206The National Organization for Rare Disorders The Importance of Rare Disease Education Sophia A. Walker February 25, 2015 Recently a wise professor told my class that we medical professionals are some of the most powerful people in the world. Indeed, we have the ability to meet people at their most vulnerable,
- [Cabaletta Bio Receives IND Clearance from FDA to Initiate First Clinical Trial of DSG3-CAART in Patients with Mucosal Pemphigus Vulgaris](https://www.pemphigus.org/cabaletta-bio-receives-ind-clearance-from-fda-to-initiate-first-clinical-trial-of-dsg3-caart-in-patients-with-mucosal-pemphigus-vulgaris/): Cabaletta Bio, Inc., a clinical-stage biotechnology company focused on the discovery and development of engineered T cell therapies for the treatment of patients with B cell-mediated autoimmune diseases, announced this week that it has received clearance of its Investigational New Drug (IND) application from the U.S. Food and Drug Administration (FDA) to initiate a first-in-human clinical
- [Phase III PEMPHIX Study Shows Genentech’s Rituxan (Rituximab) Superior to Mycophenolate Mofetil in Patients With Pemphigus Vulgaris](https://www.pemphigus.org/phase-iii-pemphix-study-shows-genentechs-rituxan-rituximab-superior-to-mycophenolate-mofetil-in-patients-with-pemphigus-vulgaris/): Genentech, a member of the Roche Group, announced data this week from the Phase III PEMPHIX study evaluating the efficacy and safety of Rituxan® (rituximab) compared to mycophenolate mofetil (MMF) in adults with moderate to severe pemphigus vulgaris (PV). The study met the primary endpoint at week 52 and demonstrated that Rituxan is superior to MMF,
- [Cabaletta Bio Announces FDA Orphan Drug Designation for DSG3- CAART for the Treatment of Pemphigus Vulgaris](https://www.pemphigus.org/cabaletta-bio-announces-fda-orphan-drug-designation-for-dsg3-caart-for-the-treatment-of-pemphigus-vulgaris/): Cabaletta Bio, Inc., a clinical-stage biotechnology company focused on the discovery and development of engineered T cell therapies for patients with B cell-mediated autoimmune diseases, announced on January 29, 2020 that the U.S. Food and Drug Administration (FDA) has granted Orphan Drug Designation for the Company’s lead product candidate, DSG3-CAART, for the treatment of pemphigus vulgaris
- [Advocacy in Action](https://www.pemphigus.org/advocacy-in-action-2/): You may be aware of the IPPF’s advocacy efforts. Now, we need you to advocate, too. Your story is important and shows that rare disease not only affects Americans, but Americans in your district. Your story proves to congressional members that their decisions have a great impact on human life and well-being.
- [Cabaletta Bio Receives FDA Fast Track Designation for DSG3- CAART for the Treatment of Mucosal PV](https://www.pemphigus.org/cabaletta-bio-receives-fda-fast-track-designation-for-dsg3-caart-for-the-treatment-of-mucosal-pv/): The U.S. FDA has granted Fast Track Designation for DSG3-CAART, Cabaletta Bio's lead product candidate for treatment of mucosal pemphigus vulgaris, for improving healing of mucosal blisters in patients with mPV.
- [Help Support Medicare Advantage & Access to Treatment](https://www.pemphigus.org/help-support-medicare-advantage-access-to-treatment/): On September 9, 2014, members of the IPPF traveled to Capitol Hill in Washington D.C. to talk to their local congress members about legislation affecting the pemphigus and pemphigoid community. Senior Peer Health Coach Marc Yale, and Patient Services Coordinator Noelle Madsen spoke with six California members of the House of Representatives, and Senators Barbara
- ["Coaches Corner" - Keeping All Your Doctors in the Loop](https://www.pemphigus.org/keeping-all-your-doctors-in-the-loop/): Now that you know what you have been diagnosed with, it is important that all of the doctors who treat you are aware of pemphigus and pemphigoid (P/P), too. This includes pemphigus vulgaris, bullous pemphigoid, mucous membrane pemphigoid (aka ocular cicatricial pemphigoid), pemphigus foliaceus, pemphigus vegetans, IgA pemphigus, paraneoplastic pemphigus, or gestational pemphigoid. All
- ["Coaches Corner" - When Tapering From Prednisone](https://www.pemphigus.org/when-tapering-from-prednisone/): In the beginning of treating a bullous skin disease like pemphigus, prednisone is usually prescribed. A high dosage over time, can be tapered down. While we are thrilled that the dosage is being lowered, the side effects of tapering can be debilitating. It is safer to decrease the dosage by no more than 5mg per week. Tapering
- ["Coaches Corner" - Hair Loss](https://www.pemphigus.org/coaches-corner-hair-loss/): Although the scalp can be frequently involved with pemphigus/pemphigoid, associated hair loss has only rarely been described. In one case, treatment with oral and topical corticosteroids combined with mycophenolate mofetil resulted in clinical remission, with regrowth of scalp hair. (1) The main connection between prednisone and hair loss seems to be that, as a side effect of
- ["Coaches Corner"- Keep All of Your Doctors in the Know](https://www.pemphigus.org/coaches-corner-keep-all-of-your-doctors-in-the-know/): Most individuals have a primary care physician. Many have a dentist. Many women have an OB/GYN for women’s health. There are a variety of specialists’ that one may have: Internists, Ear/Nose & Throat (ENT), Ophthalmologists, Rheumatologists, and more. When you are being treated for any form of pemphigus or pemphigoid (P/P) and are on any
- ["Coaches Corner" - Prednisone](https://www.pemphigus.org/coaches-corner-prednisone/): In a previous Coaches Corner I have given prednisone tips. It is a good time now for an update as there are new patients who are diagnosed and who are leery of the side effects that can come from taking a steroid treatment. No one chooses to take prednisone as a medication. However, it is
- ["Coaches Corner" - It's Worth the Appeal](https://www.pemphigus.org/coaches-corner-its-worth-the-appeal/): After months of uncertainty waiting for a diagnosis and finally finding a physician who can treat your rare skin disease, you return from the mailbox with a denial letter from your insurance company. After the shock and frustration has subsided you are now faced with the decision of whether it is worth appealing this insurance
- ["Coaches Corner" – A Measure of Improvement](https://www.pemphigus.org/coaches-corner-a-measure-of-improvement/): Pemphigus and pemphigoid (P/P) can take a long time to improve or reach remission. The process can take months or even years. Although it may seem that this disease appeared overnight, in fact, it has taken a long time to present itself, and it will most likely take just as long to resolve. So the
- ["Coaches Corner" - Moving to a New State](https://www.pemphigus.org/coaches-corner-moving-to-a-new-state/): This article is meant for those of you who have recently or about to move to a new area. After living in the greater Seattle area for 58 years, I moved to the San Francisco Bay area in August ‘14. I encountered more challenges that I had expected. I had to find new medical insurance,
- ["Coaches Corner" - Become Empowered](https://www.pemphigus.org/coaches-corner-become-empowered/): Having a rare disease like pemphigus or pemphigoid can make you feel like you have lost control of your life. After being diagnosed you may experience fear, confusion, and you may feel unclear about your future. You may even feel helpless, vulnerable, and at the mercy of others. Your self- esteem may be compromised along
- ["Coaches Corner" - Sunscreen](https://www.pemphigus.org/coaches-corner-sunscreen/): Living with a bullous skin disease is a challenge in more ways than one. In addition to taking medication we also need to be taking supplements, avoid certain foods and spices, take caution in how we move and bathe, and relax to reduce stress. We also need to take extra precautions against the sun’s harmful
- ["Coaches Corner" - How Meditation Can Reduce Disease Activity](https://www.pemphigus.org/coaches-corner-how-meditation-can-reduce-disease-activity/): Studies have shown that there is a mind-body connection. It is known that stress can cause headaches, muscle aches, tummy aches, and blisters! For those affected by pemphigus and pemphigoid (P/P), when your stress levels are high, the antibodies know when it is time to come out and play. Horrors! It is easier said than
- ["Coaches Corner" - Disability](https://www.pemphigus.org/coaches-corner-disability/): Deciding whether you should continue working or go on Social Security Disability is a tough decision. It can add to your stress level and worsen your disease activity. Before you rush into any decisions you should take inventory of how you are feeling physically, emotionally, and spiritually. Your job or career can have a significant
- ["Coaches Corner" - Traveling from Home](https://www.pemphigus.org/coaches-corner-traveling-from-home/): When you decide to take a trip outside of the state where you live it is a wise idea to make sure that you have enough medications with you to last the length of your trip. Important information to keep on you while traveling: a medical identification card and insurance card. It is important to have a
- ["Coaches Corner" - Flare after Remission](https://www.pemphigus.org/flare-after-remission/): Having a flare after being in remission can be a scary and frustrating experience. Thoughts run through your head about your previous experiences and you may wonder if your disease will be as bad as it was before. When you have the flare, it is important to recognize it and take the challenge head-on. It’s
- ["Coaches Corner" - Caregiver Support](https://www.pemphigus.org/coaches-corner-caregiver-support/): I recently spoke with a patient who stated that his marriage was under a great deal of strain – which is highly understandable as the significant others of patients are the caregivers and are often in the line of fire, so to speak. This was not the first time a wife or husband had confided this to
- ["Coaches Corner" - Oral Activity](https://www.pemphigus.org/coaches-corner-oral-activity/): When you experience disease activity in your mouth it can be quite uncomfortable. Patients may experience blisters anywhere inside the oral area: inside of cheeks, upper and underside of tongue, roof of mouth, and as far back as where the uvula is. The gums can peel as well. Swallowing can be difficult. If this occurs
- ["Coaches Corner" - Get a B-Cell Test](https://www.pemphigus.org/coaches-corner-get-a-b-cell-test/): You just left your doctor’s office, and you’ve been told that they want to try Rituximab (Rituxan/Mabthera). Most likely, the doctor explained how the treatment is a B-Cell inhibitor, and that it is a very targeted therapy designed to eliminate those cells in your body that are attacking the proteins in your skin. Your doctor
- ["Coaches Corner" - Physician Communication](https://www.pemphigus.org/coaches-corner-physician-communication/): While you are seeing a qualified dermatologist who is treating you for your Pemphigus Vulgaris, Bullous Pemphigoid, Pemphigus Foliaceus, Mucous Membrane Pemphigoid, etc. you might also be seeing your own dentist, OB/GYN, internist, ophthalmologist or ear/nose/throat specialist. Please be sure that all of your doctors are aware of your condition and that they have access to
- ["Coaches Corner" - Don't Forget About the Topical](https://www.pemphigus.org/coaches-corner-dont-forget-about-the-topical/): Many times when seeing a physician for pemphigus or pemphigoid they are quick to prescribe a systemic treatment that will hopefully help you reach remission. This can be a good thing. However, sometimes the obvious may be overlooked. For example, if you are in pain, having trouble eating or swallowing, your clothes are sticking to
- ["Coaches Corner" - Avoid the Trauma and Skip the Drama](https://www.pemphigus.org/coaches-corner-avoid-the-trauma-and-skip-the-drama/): All it takes is the slightest bump up against an object, just a few too many minutes in the sun, eating something that is hard and sharp or even the force of water pressure coming out of your shower head to cause trauma to your skin tissue. This trauma creates a reaction in your body’s
- ["Coaches Corner" - Prednisone Tips](https://www.pemphigus.org/coaches-corner-prednisone-tips/): Prednisone Tips Take as early in the morning as possible so as to avoid sleep problems at night. Supplementing a healthy diet with calcium will help to keep bones healthy through a course of prednisone. Reducing salt intake can prevent side effects associated with fluid retention. Taking it with meals could prevent stomach upset. If you
- ["Coaches Corner" - It's a Pain in the Mouth!](https://www.pemphigus.org/coaches-corner-its-a-pain-in-the-mouth/): With Pemphigus and Pemphigoid, painful oral lesions frequently occur in the mouth and throat causing difficulty with drinking and eating solid foods. Let's face it, it can be just painful! Assessing your individual tolerance to foods and adjusting what you are eating will enable you to better understand which foods to eat and which foods
- ["Coaches Corner" - Vitamins and Minerals](https://www.pemphigus.org/coaches-corner-vitamins-and-minerals/): People with chronic health conditions like Pemphigus and Pemphigoid are more likely to have vitamin and mineral deficiencies. This deficiency can be from the disease itself, the regimen of medications that you are on or even from the change in your lifestyle after being diagnosed. Our bodies absorb vitamins and minerals from the foods that
- [Welcome to Coaches Corner](https://www.pemphigus.org/welcome-to-coaches-corner/): As a Peer Health Coach with the IPPF, I am often reminded how fortunate that I am to be able to speak with so many individuals who lives have been affected in so many different ways from Pemphigus and Pemphigoid. I am able to take these collective experiences and pass them on to others in

## Pages

- [Homepage](https://www.pemphigus.org/): IPPF -
- [Staff & Coaches](https://www.pemphigus.org/staff-coaches/)
- [Patient Resources](https://www.pemphigus.org/patient-resources/): IPPF Guide to Pemphigus and Pemphigoid English The IPPF Guide to Pemphigus and Pemphigoid is a great document that explains about what our diseases are, how they are diagnosed, and common treatment options. Hebrew The IPPF Guide to Pemphigus and Pemphigoid (Hebrew translation). Spanish The IPPF Guide to Pemphigus and Pemphigoid (Spanish translation). Arabic The
- [Patient Education Webinars](https://www.pemphigus.org/patient-education-webinars/): Upcoming Webinars
- [Employment](https://www.pemphigus.org/employment/): Employment with the IPPF The IPPF team is a dedicated group of people who work on behalf of patients and caregivers everywhere. Open positions will be listed here as they become available. Communications Manager (posted June 15, 2026) THE IPPF IS AN EQUAL OPPORTUNITY EMPLOYER PROUDLY SERVING THOSE AFFECTED BY PEMPHIGUS AND PEMPHIGOID.
- [Support Groups](https://www.pemphigus.org/support-groups/): U.S. Support Groups California Florida Mid-Atlantic Pacific Northwest Tri-State/New York Area Find upcoming meetings on our Events page. For more information contact info@pemphigus.org or call 916-922-1298 International Organizations & Associations Australia Australasian Blistering Diseases Foundation France Association Pemphigus & Pemphigoide France Germany Pemphigus und Pemphigoid Selbsthilfegruppe e.V. Japan Pemphigus/Pemphigoid Friends Association The Netherlands Netwerk Nederland Pemphigus en
- [Advisors](https://www.pemphigus.org/advisors/): Medical Advisory Council Kyle Amber, MDChicago, ILRush Medical College Donna Culton, MD, PhDChapel Hill, NCUniversity of North Carolina- Chapel Hill Ron Feldman, MD, PhDAtlanta, GAEmory University Tanya Gibson, DDSKansas City, MOUniversity of Missouri- Kansas City Robert Kelsch, DMDNew York, NYLong Island Jewish Medical Center, Hofstra North Shore-LIJ School of Medicine M. Peter Marinkovich, MDStanford, CAStanford
- [Pemphigoid](https://www.pemphigus.org/pemphigoid/): Information for Patients Pemphigoid is a group of subepidermal, blistering autoimmune diseases that primarily affect the skin, especially the lower abdomen, groin, and flexor surfaces of the extremities. Here, autoantibodies (anti-BPA-2 and anti-BPA-1) are directed against the basal layer of the epidermis and mucosa. The condition tends to persist for months or years with periods
- [P/P Clinical Information](https://www.pemphigus.org/p-p-clinical-information/): The intraepidermal blistering observed in pemphigus occurs due to an immune response that results in the deposition of autoantibodies against epidermal cell surface antigens within the epithelium of mucous membranes or skin. The mechanism through which acantholysis occurs is not fully understood. The four major types of pemphigus include pemphigus vulgaris, pemphigus foliaceus, IgA pemphigus,
- [Ways to Give](https://www.pemphigus.org/ways-to-give/): Make a One-time Gift When you give to IPPF, you're ensuring patients and caregivers get the support and information they need, exactly when they need it most. Every donation helps us connect patients and caregivers with life-changing resources, peer support, and expert guidance. Your support also helps accelerate breakthroughs like new FDA-approved therapies that improve
- [IPPF Natural History Study](https://www.pemphigus.org/ippf-natural-history-study/): What types of data will be collected in the Natural History Study? The IPPF Natural History Study collects data on the following topics: Socio-demographics Medical and diagnostics Treatment and disease progression Management of care Quality of life Is the data secure? The IPPF Natural History Study follows strict government guidelines to assure patient information is
- [Board of Directors](https://www.pemphigus.org/board-of-directors/)
- [Clinical Trials](https://www.pemphigus.org/clinical-trials/): Current Clinical Trials The following clinical trials are automatically generated from ClinicalTrials.gov Pemphigus Pemphigoid
- [Treatments](https://www.pemphigus.org/treatments/): Types of Therapies Corticosteroids Corticosteroids mimic the effect of the adrenal hormones your body naturally produces. Systemic corticosteroids are the most established therapy for the management of PV. In most cases, when used in high doses, they can rapidly control disease. The most common corticosteroids include Prednisone and Prednisolone. Prednisone suppresses the immune system and
- [Dupixent for Bullous Pemphigoid](https://www.pemphigus.org/dupixent-for-bullous-pemphigoid/): What is Dupixent (dupilumab)? Dupixent (dupilumab) is an injectable prescription biologic medication that works by targeting specific parts of the immune system involved in inflammation. Dupixent is NOT a steroid or an immunosuppressant Dupixent targets a key source of underlying inflammation that may contribute to BP Dupixent may help achieve sustained remission and reduce itch
- [Resources for Healthcare Professionals](https://www.pemphigus.org/resources/): Educational videos A Patient’s Journey toward a Pemphigus Vulgaris Diagnosis Watch Becky Strong describe her emotional journey towards obtaining a pemphigus vulgaris diagnosis. This honest portrayal of a patient’s search for answers emphasizes the importance of awareness and early diagnosis. Unfortunately, many patients share Becky’s experience. Print Materials Print materials can be downloaded below. Materials
- [Patients](https://www.pemphigus.org/patients/): Peer Coaching The IPPF’s Peer Coaches offer the opportunity to communicate with specific members of the IPPF community who have pemphigus and pemphigoid. Peer Coaches are volunteers who have learned how to manage their diseases. They are willing to share their personal tips and tricks, as well as IPPF resources and educational materials that help
- [Find a Doctor Directory – Start Your Search Here](https://www.pemphigus.org/find-a-doctor-directory-start-your-search-here/): The Find a Doctor Directory is a helpful starting point for patients, caregivers, and families looking for healthcare providers with experience treating pemphigus and pemphigoid. While the providers listed have been added by contact with P/P treating physicians, recommendations from patients, and referrals from other physicians, it’s important to remember that “knowledgeable” can mean different
- [Find a Doctor](https://www.pemphigus.org/find-doctor/)
- [IPPF Health Tracker](https://www.pemphigus.org/ippf-health-tracker/): Managing pemphigus and pemphigoid can sometimes feel overwhelming, but keeping track of symptoms, treatments, and other health factors may help you better understand your journey. These individual tracking pages are designed based on what many find helpful to monitor. Each page is available as a downloadable PDF, so you can create a personalized tracker that
- [About Us](https://www.pemphigus.org/about-us/): Other Support Sites and Affiliates American Autoimmune Related Diseases Association European Organization for Rare Disorders Ocular Immunology and Uveitis Foundation Global Genes
- [ADVENT Resources for BP](https://www.pemphigus.org/advent-for-bp/): The following resources have been provided by ADVENT, a global medical education program designed to advance the understanding of type 2 inflammation, by Sanofi and Regeneron. These resources are intended for healthcare professionals only.
- [Peer Coaches](https://www.pemphigus.org/peer-coaches/): Ask a Coach Our Coaches Resources Patient checklist Patient guide
- [Volunteer](https://www.pemphigus.org/volunteer/): Join the IPPF Volunteer Community - Make a Difference Today Are you passionate about making a real impact in the lives of those affected by pemphigus and pemphigoid? The IPPF is looking for dedicated volunteers to help, support, educate, and advocate for our community. Whether you have a few hours a month or want to
- [Get Involved](https://www.pemphigus.org/get-involved/): Volunteer If you are looking for a way to give back to the IPPF, consider sharing your talents as a volunteer. This is a great opportunity for anyone who feels strongly about helping our community, wants to give back, and wants to help grow the IPPF. Write an article We are always looking for contributors to both
- [Clinical Trial Information for Patients](https://www.pemphigus.org/clinical-trial-information/): What are Clinical Trials? In a clinical trial, participants receive specific interventions according to the research plan or protocol created by the investigators. These interventions may be medical products, such as drugs or devices; procedures; or changes to participants’ behavior, such as diet. Clinical trials may compare a new medical approach to a standard one
- [Medicare](https://www.pemphigus.org/medicare-resources/): Please note: The resources on the website are provided for informational purposes only. The IPPF does not have an insurance or Medicare/Medicaid expert on staff and cannot answer any questions regarding plans or changes. If needing assistance, contact your local State Health Insurance Program (SHIP) at https://www.shiphelp.org/. If you signed up for coverage through a
- [Biopsies Save Lives](https://www.pemphigus.org/biopsies-save-lives/): Get your free information handout Clinical Presentation Dental professionals should think of pemphigus vulgaris (PV) or mucous membrane pemphigoid (MMP) when there is a combination of: Multiple oral lesions Ulcerations preceded by bullae (however, in many cases, the bullae may not be evident to the patient or clinician) Chronic lesions (non-healing or very slow to
- [Patient Stories](https://www.pemphigus.org/patient-stories/)
- [Student and Continuing Education](https://www.pemphigus.org/student-and-continuing-education/)
- [Quarterly](https://www.pemphigus.org/quarterly/): The Journal of the IPPF Current Issue- Quarter 2: 2024 View Digital Issue View PDF Issue Reading on your phone? View the mobile-optimized articles: Message from the Executive Director: Patrick Dunn Advocating at the Coalition of Skin Diseases Hill Day Accelerating Awareness: The Vital Role of Participation in Dermatology, Nursing, and Oral Medicine Research Meetings
- [Rituxan](https://www.pemphigus.org/rituxan/): FDA Approval In June of 2018, the U.S. Food and Drug Administration (FDA) approved Rituxan® (rituximab) for the treatment of adults with moderate to severe pemphigus vulgaris (PV). Earlier in the year, the FDA had granted Priority Review, Breakthrough Therapy Designation, and Orphan Drug Designation to Rituxan for the treatment of PV. Rituxan is the
- [EL-PFDD Meeting](https://www.pemphigus.org/el-pfdd/): Meeting Recordings: Part 1: Welcome and Opening Remarks Patient Focused Drug Development at the FDA (Dr. Shari Targum) Current Treatment and Limitations (Dr. Aimee Payne) Background: Pemphigus and Pemphigoid (Dr. Pascal Joly) Patient Story Videos Session 1: Disease Symptoms and Treatments- How They Impact the Daily Lives of Patients Part 2: Session 1 Continued: Disease
- [Find a Doctor](https://www.pemphigus.org/complete-this-form-to-access-the-map/): The IPPF maintains a directory of medical and dental professionals at no cost and without preference to any physician listed herein. The purpose of this directory is to provide patients with contact information for medical and/or dental professionals familiar with P/P. This directory is not inclusive by any means. It has been developed from contact
- [Contact Us](https://www.pemphigus.org/contact-us/): General Questions Email info@pemphigus.org Telephone (855) 4PEMPHIGUS (855-473-6744)(916) 922-1298 Mail 915 Highland Pointe Dr, Ste 250Roseville, CA 95678United States of America If you are experiencing a medical emergency, call your local emergency line (911 in the US).
- [Our Programs](https://www.pemphigus.org/our-programs/): The Four Pillars of the IPPF
- [Find a Doctor](https://www.pemphigus.org/find-a-doctor/)
- [Prescription Assistance](https://www.pemphigus.org/prescription-assistance/): PAN Foundation Fund The PAN Foundation helps underinsured people with life-threatening, chronic, and rare diseases get the medications and treatments they need by assisting with their out-of-pocket costs and advocating for improved access and affordability. Learn more about their financial assistance program for pemphigus vulgaris patients and access the toolkit here. GoodRx GoodRx is a startup
- [Become an Advocate](https://www.pemphigus.org/become-an-advocate/): Advocacy partnerships American Academy of Dermatology (AAD) The American Academy of Dermatology was founded in 1938. It is the largest, most influential and representative dermatology group in the United States. With a membership of more than 19,000, it represents virtually all practicing dermatologists in the United States, as well as a growing number of international
- [PemPress](https://www.pemphigus.org/pempress-blog/)
- [Privacy Policy](https://www.pemphigus.org/privacy-policy/): Last updated: June 15, 2021 This Privacy Policy describes Our policies and procedures on the collection, use and disclosure of Your information when You use the Service and tells You about Your privacy rights and how the law protects You. We use Your Personal data to provide and improve the Service. By using the Service,
- [Pemphigus](https://www.pemphigus.org/pemphigus/): Information for Patients Pemphigus is a group of potentially life-threatening disorders characterized by blisters in mucous membranes and skin. The blistering in pemphigus happens because of an immune response resulting in autoantibodies attacking the “glue” that holds mucous membranes or skin cells together. This process is called “acantholysis” and is not fully understood. Pemphigus patients
- [Diagnosis](https://www.pemphigus.org/diagnosis/): Diagnostic Pathway Data In October 2011, KJT Group was commissioned by the IPPF to conduct an awareness and diagnostic pathways survey. Diagnosed pemphigus and pemphigoid (P/P) patients (N=87) completed a 15-minute online survey. Of patients surveyed, 25.3% were male and 74.7% were female. The average age of patients surveyed was 55 years, with 67.8% having
- [What are Pemphigus and Pemphigoid?](https://www.pemphigus.org/what-are-pemphigus-and-pemphigoid/): Overview Pemphigus and pemphigoid are rare.More research is needed.They are easy to misdiagnose. Pemphigus and pemphigoid are NOT contagious. Not by blood. Not by fluids. Not by anything. Pemphigus and pemphigoid are not genetic. Pemphigus and pemphigoid are rare, autoimmune diseases that affect a very small percentage of the population. There are many different autoimmune
- [Financials](https://www.pemphigus.org/financials/): IRS Form 990 The IRS Form 990 is the annual tax return that nonprofits in the US submit to the Internal Revenue Service. It provides detailed information about a nonprofit’s income, expenses and operational activities, allowing donors to evaluate how effectively the nonprofit is performing. You can view our latest IRS Form 990 on Guidestar.org View
- [Research Grants](https://www.pemphigus.org/research-grants/): IPPF Research Grant Program The grant period is closed. Congratulations to the 2017-2018 IPPF Research Grant Award Recipients: Kyle T. Amber, MD – Identifying novel pharmacologic targets in bullous pemphigoid: Unraveling the mechanisms of eosinophils Barbara Horvath, MD – Characterizing molecular pathways, epitopes, eosinophils and IL-31 expression in bullous and nonbullous pemphigoid. What makes the blister? Animesh
- [Disease Management](https://www.pemphigus.org/disease-management/): Prevention and Other Aspects of Management Several factors seem to exacerbate pemphigus, including dental work, sun exposure, X-rays and trauma. Oral issues: Prophylactic administration of 20mg per day of prednisone prior to dental work has been suggested (o).For oral pemphigus, measures such as soft diets and soft toothbrushes help minimize local trauma. Topical analgesics or
- [Disease Outcomes](https://www.pemphigus.org/disease-outcomes/): Current Consensus of Disease Outcomes Pemphigus and pemphigoid are chronic illnesses that, with rare exception, do not improve without active treatment. Treatment approaches include a control phase and then a maintenance phase, with the possibility of complete remission or disease relapse (flare). Current consensus of disease outcomes during treatment are: Baseline: Defined as the day
- [Diagnostics](https://www.pemphigus.org/diagnostics/): Diagnostic Testing Diagnosis of all bullous conditions is based on three measures: Clinical features: appearance of lesions, erosions and blisters, Nikolsky sign, presence or absence of scarring and distribution of lesions.Biopsy of skin or mucous membrane, with characteristic histological features.Direct and indirect immunofluorescence: detection of autoantibodies either in a biopsy specimen (direct) or in the
- [Healthcare Professionals](https://www.pemphigus.org/healthcare-professionals/)
- [Registry Substudy Info](https://www.pemphigus.org/registry-substudy-info/): Interested in developing a registry sub-study? We are introducing a new multi-stakeholder model of engagement, whereby the IPPF, in collaboration with researchers spanning industry, academia and medicine, can establish sub-studies to propel research for rare conditions. This new functionality allows for partnerships that bring stakeholders together to accelerate the pace of research for rare conditions,

## Stories

- [Mei Ling](https://www.pemphigus.org/stories/mei-ling/): I’ve been a peer health coach (PHC) with the IPPF since 2012. However, if you had told me back in early 2001 that this is what I would be doing today, I never would have believed you. I had never even heard of pemphigus vulgaris (PV) then, much less known about rare autoimmune diseases. I’ve
- [Halima](https://www.pemphigus.org/stories/halima/): My symptoms started at the beginning of April 2018. My mouth was inflamed, and I had painful blisters on both sides that made it very difficult to eat or drink. I had no idea what was causing my symptoms, and I went to four different doctors. My primary care doctor told me that I needed
- [Rudy](https://www.pemphigus.org/stories/rudy/): My journey with pemphigus foliaceus (PF) began in 2009; however, my symptoms began in 2008. I have been in remission since 2016. It has been a long journey, and I have encountered many bumps and detours along the way. I would not have reached remission without the support from my wife, Jennifer, of 26 years,
- [Minatallah](https://www.pemphigus.org/stories/minatallah/): When applying to dental school, my initial feelings about dentistry centered on a yearning to help others. Our prerequisite courses required us to be involved within the community and provide for those in need of dental care. This helped open our eyes about what dentistry entails. However, I’ve learned that I can never say, “I’ve
- [Linda](https://www.pemphigus.org/stories/linda/): My journey began in August, 2017. I had a slight rash on my lower back that was extremely itchy. When I went to see my primary care doctor for my annual physical, I mentioned the rash, but he never looked at it. He just brushed it off. One month later, I spent a week on
- [Toby](https://www.pemphigus.org/stories/toby/): When I was diagnosed with pemphigus vulgaris (PV) in late 2010, like most patients I’d never heard of the disease. Also, like most, I’d endured about six months of worsening symptoms before finding a doctor who was able to help me. After starting me on medication, the next thing my dermatologist did was to tell
- [Fred](https://www.pemphigus.org/stories/fred/): It was January 2007, and I was sitting across the desk from the second dermatologist I had seen in five months. For the second time, I was told that my condition was probably “seborrheic something-or-other” and was prescribed an alcohol-based topical steroid that I knew would be painful to apply. I had endured three months
- [Kathleena](https://www.pemphigus.org/stories/kathleen/): When I was first diagnosed with pemphigus vulgaris (PV), I didn’t have the slightest clue what those strange words meant or how this disease would impact my life. The physician who finally diagnosed me handed me a description of the disease and referred me to another doctor, an expert in PV management. In the meantime,

## Doctors

- [Dr. Hagar El Sayed](https://www.pemphigus.org/doctors/dr-hagar-el-sayed/)
- [Dr. Marco Magalhaes](https://www.pemphigus.org/doctors/dr-marco-magalhaes/)
- [Dr. Andrea Dale Maderal](https://www.pemphigus.org/doctors/dr-andrea-dale-maderal-2/)
- [Dr. Andrea Dale Maderal](https://www.pemphigus.org/doctors/dr-andrea-dale-maderal/)
- [Dr. Amol Sura](https://www.pemphigus.org/doctors/dr-amol-sura/)
- [Dr. Esen Akpek](https://www.pemphigus.org/doctors/dr-esen-akpek/)
- [Dr. Thomas Tull](https://www.pemphigus.org/doctors/dr-thomas-tull/)
- [Dr. Tracy Golden](https://www.pemphigus.org/doctors/dr-tracy-golden/)
- [Dr. Tejinder Kaur](https://www.pemphigus.org/doctors/dr-tejinder-kaur/)
- [Dr. Paulina Liberman](https://www.pemphigus.org/doctors/dr-paulina-liberman/)
- [Dr. Angela Weatherall](https://www.pemphigus.org/doctors/dr-angela-weatherall/)
- [Dr. Wanda Patterson](https://www.pemphigus.org/doctors/dr-wanda-patterson/)
- [Dr. Levin Hirani](https://www.pemphigus.org/doctors/dr-levin-hirani/)
- [Dr. Sara Awad](https://www.pemphigus.org/doctors/dr-sara-awad/)
- [Dr. Wesley Sherrell](https://www.pemphigus.org/doctors/dr-wesley-sherrell-2/)
- [Dr. Wesley Sherrell](https://www.pemphigus.org/doctors/dr-wesley-sherrell/)
- [Dr. Drew Kuraitis](https://www.pemphigus.org/doctors/dr-drew-kuraitis-2/)
- [Dr. Drew Kuraitis](https://www.pemphigus.org/doctors/dr-drew-kuraitis/)
- [Dr. Alexandra Howell](https://www.pemphigus.org/doctors/dr-alexandra-howell/)
- [Dr. Cristina Thomas](https://www.pemphigus.org/doctors/dr-cristina-thomas/)
- [Dr. Jordan Talia](https://www.pemphigus.org/doctors/dr-jordan-talia/)
- [Dr. Amy Xu](https://www.pemphigus.org/doctors/dr-amy-xu/)
- [Dr. Khang Nguyễn](https://www.pemphigus.org/doctors/dr-khang-nguyen/)
- [Dr. Adela Rambi Cardones](https://www.pemphigus.org/doctors/dr-adela-rambi-cardones-3/)
- [Dr. Adela Rambi Cardones](https://www.pemphigus.org/doctors/dr-adela-rambi-cardones-2/)
- [Dr. Adela Rambi Cardones](https://www.pemphigus.org/doctors/dr-adela-rambi-cardones/)
- [Dr. Ricardo Padilla](https://www.pemphigus.org/doctors/dr-ricardo-padilla/)
- [Dr. Peter Chang](https://www.pemphigus.org/doctors/dr-peter-chang/)
- [Dr. Stephen Anesi](https://www.pemphigus.org/doctors/dr-stephen-anesi/)
- [Dr. Leonardo Tjahjono](https://www.pemphigus.org/doctors/dr-leonardo-tjahjono/)
- [Dr. Xiying Fan](https://www.pemphigus.org/doctors/dr-xiying-fan-3/)
- [Dr. Xiying Fan](https://www.pemphigus.org/doctors/dr-xiying-fan-2/)
- [Dr. Xiying Fan](https://www.pemphigus.org/doctors/dr-xiying-fan/)
- [Dr. Anthony Gaspari](https://www.pemphigus.org/doctors/dr-anthony-gaspari/)
- [Dr. Cameron West](https://www.pemphigus.org/doctors/dr-cameron-west/)
- [Dr. Harib Ezaldein](https://www.pemphigus.org/doctors/dr-harib-ezaldein/)
- [Dr. Daniela Kroshinsky](https://www.pemphigus.org/doctors/dr-daniela-kroshinsky/)
- [Dr. Sweta Subhadarshani](https://www.pemphigus.org/doctors/dr-sweta-subhadarshani/)
- [Dr. Miesha Merati](https://www.pemphigus.org/doctors/dr-miesha-merati/)
- [Dr. Razzaque Ahmed](https://www.pemphigus.org/doctors/dr-razzaque-ahmed/)
- [Dr. David Najarian](https://www.pemphigus.org/doctors/dr-david-najarian/)
- [Dr. Petros Yoon](https://www.pemphigus.org/doctors/dr-petros-yoon/)
- [Dr. Ann Lin](https://www.pemphigus.org/doctors/dr-ann-lin-2/)
- [Dr. Ann Lin](https://www.pemphigus.org/doctors/dr-ann-lin/)
- [Dr. Philip Curman](https://www.pemphigus.org/doctors/dr-philip-curman/)
- [Dr. Emma Killoran](https://www.pemphigus.org/doctors/dr-emma-killoran/)
- [Dr. Emily Gorell](https://www.pemphigus.org/doctors/dr-emily-gorell/)
- [Dr. Rakesh Bharti](https://www.pemphigus.org/doctors/dr-rakesh-bharti/)
- [Dr. Michael Kasperkiewicz](https://www.pemphigus.org/doctors/dr-michael-kasperkiewicz-2/)
- [Dr. Michael Kasperkiewicz](https://www.pemphigus.org/doctors/dr-michael-kasperkiewicz/)
- [Dr. Jamal Saleh](https://www.pemphigus.org/doctors/dr-jamal-saleh-2/)
- [Dr. Jamal Saleh](https://www.pemphigus.org/doctors/dr-jamal-saleh/)
- [Dr. Nicole Cassler](https://www.pemphigus.org/doctors/dr-nicole-cassler-2/)
- [Dr. Nicole Cassler](https://www.pemphigus.org/doctors/dr-nicole-cassler/)
- [Dr. Maya Vedamurthy](https://www.pemphigus.org/doctors/dr-maya-vedamurthy/)
- [Dr. Ramie Fathy](https://www.pemphigus.org/doctors/dr-ramie-fathy/)
- [Dr Ajith Kannangara](https://www.pemphigus.org/doctors/dr-ajith-kannangara/)
- [Dr. Rachel Lipman](https://www.pemphigus.org/doctors/dr-rachel-lipman/)
- [Dr. Sara Fossum](https://www.pemphigus.org/doctors/dr-sara-fossum/)
- [Dr. Mikael Horissian](https://www.pemphigus.org/doctors/dr-mikael-horissian/)
- [Dr. Gefei Du](https://www.pemphigus.org/doctors/dr-gefei-du/)
- [Dr. Fiona Lovegrove](https://www.pemphigus.org/doctors/dr-fiona-lovegrove/)
- [Dr. Zachary Hopkins](https://www.pemphigus.org/doctors/dr-zachary-hopkins-2/)
- [Dr. Zachary Hopkins](https://www.pemphigus.org/doctors/dr-zachary-hopkins/)
- [Dr. Heather Holahan](https://www.pemphigus.org/doctors/dr-heather-holahan/)
- [Dr. Scott Peters](https://www.pemphigus.org/doctors/dr-scott-peters/)
- [Dr. Aimee Payne](https://www.pemphigus.org/doctors/dr-aimee-payne/)
- [Dr. Jacob Levitt](https://www.pemphigus.org/doctors/dr-jacob-levitt/)
- [Dr. Jonas Adalsteinsson](https://www.pemphigus.org/doctors/dr-jonas-adalsteinsson/)
- [Dr. Selma Azib](https://www.pemphigus.org/doctors/dr-selma-azib/)
- [Dr. Alexandre Brygo](https://www.pemphigus.org/doctors/dr-alexandre-brygo/)
- [Dr. Megan Noe](https://www.pemphigus.org/doctors/dr-megan-noe/)
- [Kawthar Taie](https://www.pemphigus.org/doctors/kawthar-taie/)
- [Dr. Li Li](https://www.pemphigus.org/doctors/dr-li-li/)
- [Dr. Rossana Alves](https://www.pemphigus.org/doctors/dr-rossana-alves/)
- [Dr. Julien Bouleau](https://www.pemphigus.org/doctors/dr-julien-bouleau/)
- [Dr. Lindsay Ackerman](https://www.pemphigus.org/doctors/dr-lindsay-ackerman-2/)
- [Dr. Kentaro Ikeda](https://www.pemphigus.org/doctors/dr-kentaro-ikeda/)
- [Dr. Braden Candela](https://www.pemphigus.org/doctors/dr-braden-candela-3/)
- [Dr. Braden Candela](https://www.pemphigus.org/doctors/dr-braden-candela-2/)
- [Dr. Braden Candela](https://www.pemphigus.org/doctors/dr-braden-candela/)
- [Dr. Alessandro Villa](https://www.pemphigus.org/doctors/dr-alessandro-villa/)
- [Dr. Alessandro Villa](https://www.pemphigus.org/doctors/dr-alessandro-villa-2/)
- [Dr. Agnieszka Zebrowska](https://www.pemphigus.org/doctors/dr-agnieszka-zebrowska/)
- [Dr. David Greenstein](https://www.pemphigus.org/doctors/dr-david-greenstein-2/)
- [Dr. David Greenstein](https://www.pemphigus.org/doctors/dr-david-greenstein/)
- [Dr. Brad Glick](https://www.pemphigus.org/doctors/dr-brad-glick/)
- [Dr. Ahmed Omar](https://www.pemphigus.org/doctors/dr-ahmed-omar-2/)
- [Dr. Ahmed Omar](https://www.pemphigus.org/doctors/dr-ahmed-omar/)
- [Dr. Christelle Le Roux-Villet](https://www.pemphigus.org/doctors/dr-christelle-le-roux-villet/)
- [Dr. Lara DeAngelis](https://www.pemphigus.org/doctors/dr-lara-deangelis-2/)
- [Dr. Lara DeAngelis](https://www.pemphigus.org/doctors/dr-lara-deangelis/)
- [Dr. Sophie Duvert-Lehembre](https://www.pemphigus.org/doctors/dr-sophie-duvert-lehembre-2/)
- [Dr. Sophie Duvert-Lehembre](https://www.pemphigus.org/doctors/dr-sophie-duvert-lehembre/)
- [Dr. May Alsenani](https://www.pemphigus.org/doctors/dr-may-alsenani/)
- [Dr. Karl Saardi](https://www.pemphigus.org/doctors/dr-karl-saardi/)
- [Dr. Johannes Kern](https://www.pemphigus.org/doctors/dr-johannes-kern/)
- [Dr. Erin Barrett (Wei)](https://www.pemphigus.org/doctors/dr-erin-wei/)
- [Dr. Silke Hofmann](https://www.pemphigus.org/doctors/dr-silke-hofmann/)
- [Dr. Christoph Ellebrecht](https://www.pemphigus.org/doctors/dr-christoph-ellebrecht/)
- [Dr. Katharina Boch](https://www.pemphigus.org/doctors/dr-katharina-boch/)
- [Dr. Dipankar De](https://www.pemphigus.org/doctors/dr-dipankar-de-2/)
- [Dr. Katherine France](https://www.pemphigus.org/doctors/dr-katherine-france/)
- [Dr. Ahmed Alqahani](https://www.pemphigus.org/doctors/dr-ahmed-alqahani/)
- [Dr. Sweta Rambhia](https://www.pemphigus.org/doctors/dr-sweta-rambhia-2/)
- [Dr. Zachary Schwager](https://www.pemphigus.org/doctors/dr-zachary-schwager/)
- [Dr. Michael Paley](https://www.pemphigus.org/doctors/dr-michael-paley/)
- [Professor Laurent Misery](https://www.pemphigus.org/doctors/professor-laurent-misery/)
- [Dr. Benny Wu](https://www.pemphigus.org/doctors/dr-benny-wu/)
- [Dr. Christina Krus ](https://www.pemphigus.org/doctors/dr-christina-krus-/)
- [Dr. Jun Lu](https://www.pemphigus.org/doctors/dr-jun-lu-2/)
- [Dr. Jun Lu](https://www.pemphigus.org/doctors/dr-jun-lu/)
- [Dr. Sweta Rambhia](https://www.pemphigus.org/doctors/dr-sweta-rambhia/)
- [Dr. Melissa Mauskar](https://www.pemphigus.org/doctors/dr-melissa-mauskar/)
- [Dr. Ting Wang-Weinman](https://www.pemphigus.org/doctors/dr-ting-wang-weinman/)
- [Dr. Steven Chen](https://www.pemphigus.org/doctors/dr-steven-chen/)
- [Dr. Eden Lake](https://www.pemphigus.org/doctors/dr-eden-lake/)
- [Dr. Dipankar De](https://www.pemphigus.org/doctors/dr-dipankar-de/)
- [Dr. Lindsay Ackerman](https://www.pemphigus.org/doctors/dr-lindsay-ackerman/)
- [Dr. David Cotter](https://www.pemphigus.org/doctors/dr-david-cotter/)
- [Dr. Sonal Shah](https://www.pemphigus.org/doctors/dr-sonal-shah/)
- [Dr. Bruno Duarte](https://www.pemphigus.org/doctors/dr-bruno-duarte-2/)
- [Dr. Bruno Duarte](https://www.pemphigus.org/doctors/dr-bruno-duarte/)
- [Dr. Amber Fresco](https://www.pemphigus.org/doctors/dr-amber-fresco/)
- [Dr. Anne Marano](https://www.pemphigus.org/doctors/dr-anne-marano/)
- [Dr. Matilda Nicholas](https://www.pemphigus.org/doctors/dr-matilda-nicholas/)
- [Dr. Brittney Schultz](https://www.pemphigus.org/doctors/dr-brittney-schultz/)
- [Dr. Richard Flowers](https://www.pemphigus.org/doctors/dr-richard-flowers/)
- [Dr. Ashley DiLorenzo](https://www.pemphigus.org/doctors/dr-ashley-dilorenzo-2/)
- [Dr. Ashley DiLorenzo](https://www.pemphigus.org/doctors/dr-ashley-dilorenzo/)
- [Dr. Michael Rosenblum](https://www.pemphigus.org/doctors/dr-micheal-rosenblum/)
- [Dr. Sergei Grando](https://www.pemphigus.org/doctors/dr-sergei-grando/)
- [Dr. Stefani Takahashi](https://www.pemphigus.org/doctors/dr-stefani-takahashi-2/)
- [Dr. Anand Ganesan](https://www.pemphigus.org/doctors/dr-anand-ganesan/)
- [Dr. Anand Ganesan](https://www.pemphigus.org/doctors/dr-anand-ganesan-2/)
- [Dr. Sami Uwaydat](https://www.pemphigus.org/doctors/dr-sami-uwaydat/)
- [Dr. Giuseppe Micali](https://www.pemphigus.org/doctors/dr-giuseppe-micali/)
- [Dr. Cory Simpson](https://www.pemphigus.org/doctors/dr-cory-simpson/)
- [Dr. Nadarajah Vigneswaran](https://www.pemphigus.org/doctors/dr-nadarajah-vigneswaran/)
- [Dr. Annette Czernik](https://www.pemphigus.org/doctors/dr-annette-czernik/)
- [Dr. Katharina Meier](https://www.pemphigus.org/doctors/dr-katharina-meier-2/)
- [Dr. Katharina Meier](https://www.pemphigus.org/doctors/dr-katharina-meier/)
- [Prof. Dr. Margitta Worm](https://www.pemphigus.org/doctors/prof-dr-margitta-worm/)
- [Dr. Jaime Martinez](https://www.pemphigus.org/doctors/dr-jaime-martinez/)
- [Dr. Pablo Fernandez-Peñas](https://www.pemphigus.org/doctors/dr-pablo-fernandez-penas/)
- [Dr. Savas Yayli](https://www.pemphigus.org/doctors/dr-savas-yayli/)
- [Dr. Grant Anhalt](https://www.pemphigus.org/doctors/dr-grant-anhalt-2/)
- [Dr. Grant Anhalt](https://www.pemphigus.org/doctors/dr-grant-anhalt/)
- [Dr. Sheena Kapoor](https://www.pemphigus.org/doctors/dr-sheena-kapoor/)
- [Dr. Kevin Braat](https://www.pemphigus.org/doctors/dr-kevin-braat-2/)
- [Dr. Kevin Braat](https://www.pemphigus.org/doctors/dr-kevin-braat/)
- [Dr. Brian Simmons](https://www.pemphigus.org/doctors/dr-brian-simmons/)
- [Dr. Kathryn Schwarzenberger](https://www.pemphigus.org/doctors/dr-kathryn-schwarzenberger/)
- [Dr. Nicole Fett](https://www.pemphigus.org/doctors/dr-nicole-fett-2/)
- [Dr. Nicole Fett](https://www.pemphigus.org/doctors/dr-nicole-fett/)
- [Dr. Erin Foster](https://www.pemphigus.org/doctors/dr-erin-foster/)
- [Dr. Kyle Amber](https://www.pemphigus.org/doctors/dr-kyle-amber/)
- [Dr. Biagio Didona](https://www.pemphigus.org/doctors/dr-biagio-didona/)
- [Dr. Michael McLeod](https://www.pemphigus.org/doctors/dr-michael-mcleod/)
- [Dr. Thomas Keenan](https://www.pemphigus.org/doctors/dr-thomas-keenan/)
- [Dr. Milan Anadkat](https://www.pemphigus.org/doctors/dr-milan-anadkat/)
- [Dr. Jeremy Jackson](https://www.pemphigus.org/doctors/dr-jeremy-jackson/)
- [Dr. Teri Greiling](https://www.pemphigus.org/doctors/dr-teri-greiling/)
- [Dr. Kimberly Ann Bohjanen](https://www.pemphigus.org/doctors/dr-kimberly-ann-bohjanen/)
- [Dr. Felix Lauffer](https://www.pemphigus.org/doctors/dr-felix-lauffer/)
- [Dr. Rodney Sinclair](https://www.pemphigus.org/doctors/dr-rodney-sinclair/)
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- [Dr. Anh. D. Le](https://www.pemphigus.org/doctors/dr-anh-d-le/)
- [Dr. John Kempen](https://www.pemphigus.org/doctors/dr-john-kempen/)
- [Dr. Victoria Werth](https://www.pemphigus.org/doctors/dr-victoria-werth/)
- [Dr. Timothy Patton](https://www.pemphigus.org/doctors/dr-timothy-patton/)
- [Dr. James Dunn](https://www.pemphigus.org/doctors/dr-james-dunn/)
- [Dr. Sylvia Hsu](https://www.pemphigus.org/doctors/dr-sylvia-hsu/)
- [Dr. Eve Lowenstein](https://www.pemphigus.org/doctors/dr-eve-lowenstein/)
- [Dr. Donald Belsito](https://www.pemphigus.org/doctors/dr-donald-belsito/)
- [Dr. Andrew Andrawis](https://www.pemphigus.org/doctors/dr-andrew-andrawis/)
- [Dr. Sanjay Kedhar](https://www.pemphigus.org/doctors/dr-sanjay-kedhar/)
- [Dr. Ravi Ubriani](https://www.pemphigus.org/doctors/dr-ravi-ubriani/)
- [Dr. Raphael Rosenbaum](https://www.pemphigus.org/doctors/dr-raphael-rosenbaum/)
- [Dr. Peter Klein](https://www.pemphigus.org/doctors/dr-peter-klein/)
- [Dr. Peter Klein](https://www.pemphigus.org/doctors/dr-peter-klein-2/)
- [Dr. Michele Bergen](https://www.pemphigus.org/doctors/dr-michele-bergen-2/)
- [Dr. Christopher Whitmyer](https://www.pemphigus.org/doctors/dr-christopher-whitmyer/)
- [Dr. Bruce Younger](https://www.pemphigus.org/doctors/dr-bruce-younger/)
- [Dr. Neil Korman](https://www.pemphigus.org/doctors/dr-neil-korman/)
- [Dr. Diya Mutasim](https://www.pemphigus.org/doctors/dr-diya-mutasim/)
- [Dr. Kristin McNamara](https://www.pemphigus.org/doctors/dr-kristin-mcnamara/)
- [Dr. Emily Altman](https://www.pemphigus.org/doctors/dr-emily-altman/)
- [Dr. David Koslovsky](https://www.pemphigus.org/doctors/dr-david-koslovsky/)
- [Dr. Richard Clark](https://www.pemphigus.org/doctors/dr-richard-clark/)
- [Dr. Noah Scheinfeld](https://www.pemphigus.org/doctors/dr-noah-scheinfeld/)
- [Dr. Animesh Sinha](https://www.pemphigus.org/doctors/dr-animesh-sinha/)
- [Dr. Frank Floyd](https://www.pemphigus.org/doctors/dr-frank-floyd/)
- [Dr. Marcelle Grassi](https://www.pemphigus.org/doctors/dr-marcelle-grassi/)
- [Dr. Joseph Jorizzo](https://www.pemphigus.org/doctors/dr-joseph-jorizzo/)
- [Dr. Susan Katz](https://www.pemphigus.org/doctors/dr-susan-katz/)
- [Dr. Alice Pentland](https://www.pemphigus.org/doctors/dr-alice-pentland/)
- [Dr. David Sirois](https://www.pemphigus.org/doctors/dr-david-sirois/)
- [Dr. John Fantasia](https://www.pemphigus.org/doctors/dr-john-fantasia/)
- [Dr. Robert Kelsch](https://www.pemphigus.org/doctors/dr-robert-kelsch/)
- [Dr. Mark Lebwohl](https://www.pemphigus.org/doctors/dr-mark-lebwohl/)
- [Dr. Alexander Kerr](https://www.pemphigus.org/doctors/dr-alexander-kerr/)
- [Dr. Allan Kucine](https://www.pemphigus.org/doctors/dr-allan-kucine/)
- [Dr. Joel Laudenbach](https://www.pemphigus.org/doctors/dr-joel-laudenbach/)
- [Dr. Melissa Daluvoy](https://www.pemphigus.org/doctors/dr-melissa-daluvoy/)
- [Dr. Julie Beth Skaggs](https://www.pemphigus.org/doctors/dr-julie-beth-skaggs/)
- [Dr. Julie Beth Skaggs](https://www.pemphigus.org/doctors/dr-julie-beth-skaggs-2/)
- [Dr. Kimberly Kelly](https://www.pemphigus.org/doctors/dr-kimberly-kelly/)
- [Dr. Bruce Bavitz](https://www.pemphigus.org/doctors/dr-bruce-bavitz/)
- [Dr. Kristie Hayes](https://www.pemphigus.org/doctors/dr-kristie-hayes/)
- [Dr. Robert Posnick](https://www.pemphigus.org/doctors/dr-robert-posnick/)
- [Dr. David Chu](https://www.pemphigus.org/doctors/dr-david-chu/)
- [Dr. Alan Andrews](https://www.pemphigus.org/doctors/dr-alan-andrews/)
- [Dr. Sung Hee Cho](https://www.pemphigus.org/doctors/dr-sung-hee-cho/)
- [Dr. Allen Sapadin](https://www.pemphigus.org/doctors/dr-allen-sapadin/)
- [Dr. Mahnaz Fatahzadeh](https://www.pemphigus.org/doctors/dr-mahnaz-fatahzadeh/)
- [Dr. Brian Keegan](https://www.pemphigus.org/doctors/dr-brian-keegan/)
- [Dr. Brain Rooney](https://www.pemphigus.org/doctors/dr-brain-rooney/)
- [Dr. Caryn Miller](https://www.pemphigus.org/doctors/dr-caryn-miller/)
- [Dr. David Moisa](https://www.pemphigus.org/doctors/dr-david-moisa/)
- [Dr. Nneka Comfere](https://www.pemphigus.org/doctors/dr-nneka-comfere/)
- [Dr. Rokea El-Azhary](https://www.pemphigus.org/doctors/dr-rokea-el-azhary/)
- [Dr. Amer Kalaaji](https://www.pemphigus.org/doctors/dr-amer-kalaaji/)
- [Dr. Cynthia Weaver](https://www.pemphigus.org/doctors/dr-cynthia-weaver/)
- [Dr. Wendy Heck](https://www.pemphigus.org/doctors/dr-wendy-heck/)
- [Dr. Brett Ferguson](https://www.pemphigus.org/doctors/dr-brett-ferguson/)
- [Dr. Sarah Jensen](https://www.pemphigus.org/doctors/dr-sarah-jensen/)
- [Dr. Kristen Fernandez](https://www.pemphigus.org/doctors/dr-kristen-fernandez/)
- [Dr. Lisa Ring](https://www.pemphigus.org/doctors/dr-lisa-ring/)
- [Dr. M. Yadira Hurley](https://www.pemphigus.org/doctors/dr-m-yadira-hurley/)
- [Dr. Tanya Gibson](https://www.pemphigus.org/doctors/dr-tanya-gibson/)
- [Dr. Nicole Burkemper](https://www.pemphigus.org/doctors/dr-nicole-burkemper/)
- [Dr. Sabra Sullivan](https://www.pemphigus.org/doctors/dr-sabra-sullivan/)
- [Dr. Brian Rogers](https://www.pemphigus.org/doctors/dr-brian-rogers/)
- [Dr. Donna Culton](https://www.pemphigus.org/doctors/dr-donna-culton/)
- [Dr. Timothy Turvey](https://www.pemphigus.org/doctors/dr-timothy-turvey/)
- [Dr. Thomas Ruenger](https://www.pemphigus.org/doctors/dr-thomas-ruenger/)
- [Dr. Vidya Sankar](https://www.pemphigus.org/doctors/dr-vidya-sankar/)
- [Dr. James Sciubba](https://www.pemphigus.org/doctors/dr-james-sciubba/)
- [Dr. Janine Smith](https://www.pemphigus.org/doctors/dr-janine-smith/)
- [Dr. Ramzi Hemady](https://www.pemphigus.org/doctors/dr-ramzi-hemady/)
- [Dr. Christine DeWitt](https://www.pemphigus.org/doctors/dr-christine-dewitt/)
- [Dr. Dana Frank](https://www.pemphigus.org/doctors/dr-dana-frank/)
- [Dr. Timothy Meiller](https://www.pemphigus.org/doctors/dr-timothy-meiller/)
- [Dr. Jon Meyerle](https://www.pemphigus.org/doctors/dr-jon-meyerle/)
- [Dr. Robert Ord](https://www.pemphigus.org/doctors/dr-robert-ord/)
- [Dr. Ronald Rovner](https://www.pemphigus.org/doctors/dr-ronald-rovner/)
- [Dr. David Baird](https://www.pemphigus.org/doctors/dr-david-baird/)
- [Dr. Jill Doan](https://www.pemphigus.org/doctors/dr-jill-doan/)
- [Dr. Greg Messenger](https://www.pemphigus.org/doctors/dr-greg-messenger/)
- [Dr. Mark Johnson](https://www.pemphigus.org/doctors/dr-mark-johnson/)
- [Dr. George Murakawa](https://www.pemphigus.org/doctors/dr-george-murakawa/)
- [Dr. David Fivenson](https://www.pemphigus.org/doctors/dr-david-fivenson/)
- [Dr. Andrzej Dlugosz](https://www.pemphigus.org/doctors/dr-andrzej-dlugosz/)
- [Dr. Steven Daveluy](https://www.pemphigus.org/doctors/dr-steven-daveluy/)
- [Dr. Erin Boh](https://www.pemphigus.org/doctors/dr-erin-boh/)
- [Dr. Herve Sroussi](https://www.pemphigus.org/doctors/dr-herve-sroussi/)
- [Dr. Arthur Sher](https://www.pemphigus.org/doctors/dr-arthur-sher/)
- [Dr. Sook-Bin Woo](https://www.pemphigus.org/doctors/dr-sook-bin-woo/)
- [Dr. Jerome Haber](https://www.pemphigus.org/doctors/dr-jerome-haber/)
- [Dr. Jo Shapiro](https://www.pemphigus.org/doctors/dr-jo-shapiro/)
- [Dr. Alice Gottlieb](https://www.pemphigus.org/doctors/dr-alice-gottlieb/)
- [Dr. Mark Lerman](https://www.pemphigus.org/doctors/dr-mark-lerman/)
- [Dr. Thomas Horn](https://www.pemphigus.org/doctors/dr-thomas-horn/)
- [Dr. Seth Kates](https://www.pemphigus.org/doctors/dr-seth-kates/)
- [Dr. Cathryn Sansousi](https://www.pemphigus.org/doctors/dr-cathryn-sansousi/)
- [Dr. Evelyn Lilly](https://www.pemphigus.org/doctors/dr-evelyn-lilly/)
- [Dr. William Burghardt](https://www.pemphigus.org/doctors/dr-william-burghardt/)
- [Dr. Debbie Eisen](https://www.pemphigus.org/doctors/dr-debbie-eisen/)
- [Dr. Fawn Rosenberg](https://www.pemphigus.org/doctors/dr-fawn-rosenberg/)
- [Dr. Aisha Sethi](https://www.pemphigus.org/doctors/dr-aisha-sethi/)
- [Dr. James Swan](https://www.pemphigus.org/doctors/dr-james-swan/)
- [Dr. Mark Hoffman](https://www.pemphigus.org/doctors/dr-mark-hoffman/)
- [Dr. Ali Djalilian](https://www.pemphigus.org/doctors/dr-ali-djalilian/)
- [Dr. Warren Piette](https://www.pemphigus.org/doctors/dr-warren-piette/)
- [Dr. Julie Moore](https://www.pemphigus.org/doctors/dr-julie-moore/)
- [Dr. Jose Pulido](https://www.pemphigus.org/doctors/dr-jose-pulido/)
- [Dr. Julie Combs](https://www.pemphigus.org/doctors/dr-julie-combs/)
- [Dr. Ginat Mirowski](https://www.pemphigus.org/doctors/dr-ginat-mirowski/)
- [Dr. Gurinder Singh](https://www.pemphigus.org/doctors/dr-gurinder-singh/)
- [Dr. Thelda Kestenbaum](https://www.pemphigus.org/doctors/dr-thelda-kestenbaum/)
- [Dr. Daniel Aires](https://www.pemphigus.org/doctors/dr-daniel-aires/)
- [Dr. Larry Cunningham](https://www.pemphigus.org/doctors/dr-larry-cunningham/)
- [Dr. Jeffrey Callen](https://www.pemphigus.org/doctors/dr-jeffrey-callen/)
- [Dr. Frank Drongowski](https://www.pemphigus.org/doctors/dr-frank-drongowski/)
- [Dr. Rudolph Franklin](https://www.pemphigus.org/doctors/dr-rudolph-franklin/)
- [Dr. Alison Bruce](https://www.pemphigus.org/doctors/dr-alison-bruce/)
- [Dr. Kiran Motaparthi](https://www.pemphigus.org/doctors/dr-kiran-motaparthi/)
- [Dr. Steven Yeh](https://www.pemphigus.org/doctors/dr-steven-yeh/)
- [Dr. Loretta Davis](https://www.pemphigus.org/doctors/dr-loretta-davis/)
- [Dr. Ron Feldman](https://www.pemphigus.org/doctors/dr-ron-feldman/)
- [Dr. Maria Pappas](https://www.pemphigus.org/doctors/dr-maria-pappas/)
- [Dr. Robert Swerlick](https://www.pemphigus.org/doctors/dr-robert-swerlick/)
- [Dr. Kirk Fridrich](https://www.pemphigus.org/doctors/dr-kirk-fridrich/)
- [Dr. Steven Mings](https://www.pemphigus.org/doctors/dr-steven-mings/)
- [Dr. Lawrence Chan](https://www.pemphigus.org/doctors/dr-lawrence-chan/)
- [Dr. Joaquin Brieva](https://www.pemphigus.org/doctors/dr-joaquin-brieva/)
- [Dr. Micheal Miloro](https://www.pemphigus.org/doctors/dr-micheal-miloro/)
- [Dr. Micheal Miloro](https://www.pemphigus.org/doctors/dr-micheal-miloro-2/)
- [Dr. Mary Beth Miloro](https://www.pemphigus.org/doctors/dr-mary-beth-miloro/)
- [Dr. Mary Beth Miloro](https://www.pemphigus.org/doctors/dr-mary-beth-miloro-2/)
- [Dr. Keyoumars Soltani](https://www.pemphigus.org/doctors/dr-keyoumars-soltani/)
- [Dr. Jeffery Vasta](https://www.pemphigus.org/doctors/dr-jeffery-vasta/)
- [Dr. Steven Hacker](https://www.pemphigus.org/doctors/dr-steven-hacker/)
- [Dr. Michael Ford](https://www.pemphigus.org/doctors/dr-michael-ford/)
- [Dr. John Millns](https://www.pemphigus.org/doctors/dr-john-millns/)
- [Dr. Naveed Sami](https://www.pemphigus.org/doctors/dr-naveed-sami/)
- [Dr. Christopher Crotty](https://www.pemphigus.org/doctors/dr-christopher-crotty/)
- [Dr. Jerri Johnson](https://www.pemphigus.org/doctors/dr-jerri-johnson/)
- [Dr. Carlos Nousari](https://www.pemphigus.org/doctors/dr-carlos-nousari/)
- [Dr. Alfred Hernandez](https://www.pemphigus.org/doctors/dr-alfred-hernandez/)
- [Dr. Lynn Solomon](https://www.pemphigus.org/doctors/dr-lynn-solomon/)
- [Dr. Monica Bedi](https://www.pemphigus.org/doctors/dr-monica-bedi/)
- [Dr. Dan Ilkovitch](https://www.pemphigus.org/doctors/dr-dan-ilkovitch/)
- [Dr. Naveed Sami](https://www.pemphigus.org/doctors/dr-naveed-sami-2/)
- [Dr. Meredith Hancock](https://www.pemphigus.org/doctors/dr-meredith-hancock/)
- [Dr. Sasha Chediak](https://www.pemphigus.org/doctors/dr-sasha-chediak/)
- [Dr. Bradley Abrams](https://www.pemphigus.org/doctors/dr-bradley-abrams/)
- [Dr. Brett King](https://www.pemphigus.org/doctors/dr-brett-king/)
- [Dr. Bruce Strober](https://www.pemphigus.org/doctors/dr-bruce-strober/)
- [Dr. Peter Heald](https://www.pemphigus.org/doctors/dr-peter-heald/)
- [Dr. Robert Shoen](https://www.pemphigus.org/doctors/dr-robert-shoen/)
- [Dr. Mary Tomayko](https://www.pemphigus.org/doctors/dr-mary-tomayko/)
- [Dr. Michele Bergen](https://www.pemphigus.org/doctors/dr-michele-bergen/)
- [Dr. Stephanie Harper](https://www.pemphigus.org/doctors/dr-stephanie-harper/)
- [Dr. Helena Pasieka](https://www.pemphigus.org/doctors/dr-helena-pasieka/)
- [Dr. Helena Pasieka](https://www.pemphigus.org/doctors/dr-helena-pasieka-2/)
- [Dr. Andrea Bonnick](https://www.pemphigus.org/doctors/dr-andrea-bonnick/)
- [Dr. Mark Cappel](https://www.pemphigus.org/doctors/dr-mark-cappel/)
- [Dr. George Elgart](https://www.pemphigus.org/doctors/dr-george-elgart/)
- [Dr. Christina Mitchell](https://www.pemphigus.org/doctors/dr-christina-mitchell/)
- [Dr. Victor Perez](https://www.pemphigus.org/doctors/dr-victor-perez/)
- [Dr. Francisco Kerdel](https://www.pemphigus.org/doctors/dr-francisco-kerdel/)
- [Dr. Mark Hammer](https://www.pemphigus.org/doctors/dr-mark-hammer/)
- [Dr. Dennis Song](https://www.pemphigus.org/doctors/dr-dennis-song/)
- [Dr. Nita Chainani-Wu](https://www.pemphigus.org/doctors/dr-nita-chainani-wu/)
- [Dr. Taraneh Paravar](https://www.pemphigus.org/doctors/dr-taraneh-paravar/)
- [Dr. Sahar Mirfarsi](https://www.pemphigus.org/doctors/dr-sahar-mirfarsi/)
- [Dr. Mark Mintline](https://www.pemphigus.org/doctors/dr-mark-mintline/)
- [Dr. Sahar Mirfarsi](https://www.pemphigus.org/doctors/dr-sahar-mirfarsi-2/)
- [Dr. Alexandra Theriault](https://www.pemphigus.org/doctors/dr-alexandra-theriault/)
- [Dr. Alexandra Theriault](https://www.pemphigus.org/doctors/dr-alexandra-theriault-2/)
- [Dr. Sylvia Brice](https://www.pemphigus.org/doctors/dr-sylvia-brice/)
- [Dr. Alan Palestine](https://www.pemphigus.org/doctors/dr-alan-palestine/)
- [Dr. J. Clark Huff](https://www.pemphigus.org/doctors/dr-j-clark-huff/)
- [Dr. J. Clark Huff](https://www.pemphigus.org/doctors/dr-j-clark-huff-2/)
- [Dr. David Norris](https://www.pemphigus.org/doctors/dr-david-norris/)
- [Dr. Erik Letko](https://www.pemphigus.org/doctors/dr-erik-letko/)
- [Dr. Whitney High](https://www.pemphigus.org/doctors/dr-whitney-high/)
- [Dr. Sabrina Newman](https://www.pemphigus.org/doctors/dr-sabrina-newman/)
- [Dr. John Huang](https://www.pemphigus.org/doctors/dr-john-huang/)
- [Dr. Martin Freilich](https://www.pemphigus.org/doctors/dr-martin-freilich/)
- [Dr. Stefani Takahashi](https://www.pemphigus.org/doctors/dr-stefani-takahashi/)
- [Dr. Leslie Radentz](https://www.pemphigus.org/doctors/dr-leslie-radentz/)
- [Dr. David Woodley](https://www.pemphigus.org/doctors/dr-david-woodley/)
- [Dr. Jennifer Haley](https://www.pemphigus.org/doctors/dr-jennifer-haley/)
- [Dr. Haiyan Helen Deng](https://www.pemphigus.org/doctors/dr-haiyan-helen-deng/)
- [Dr. Parish Sedghizadeh](https://www.pemphigus.org/doctors/dr-parish-sedghizadeh/)
- [Dr. Fernando Alvarez](https://www.pemphigus.org/doctors/dr-fernando-alvarez/)
- [Dr. Emanuael Maverakis](https://www.pemphigus.org/doctors/dr-emanuael-maverakis/)
- [Dr. Diana Messadi](https://www.pemphigus.org/doctors/dr-diana-messadi/)
- [Dr. Peter Marinkovich](https://www.pemphigus.org/doctors/dr-peter-marinkovich/)
- [Dr. Fu-Tong Liu](https://www.pemphigus.org/doctors/dr-fu-tong-liu/)
- [Dr. Francina Lozada-Nur](https://www.pemphigus.org/doctors/dr-francina-lozada-nur/)
- [Dr. Gary Novatt](https://www.pemphigus.org/doctors/dr-gary-novatt/)
- [Dr. Thomas Lee](https://www.pemphigus.org/doctors/dr-thomas-lee/)
- [Dr. Matthew Lewis](https://www.pemphigus.org/doctors/dr-matthew-lewis/)
- [Dr. Steven N. Shpall](https://www.pemphigus.org/doctors/dr-steven-n-shpall/)
- [Dr. Vincent DeLeo](https://www.pemphigus.org/doctors/dr-vincent-deleo/)
- [Dr. William Ko](https://www.pemphigus.org/doctors/dr-william-ko/)
- [Dr. Lora Plattner](https://www.pemphigus.org/doctors/dr-lora-plattner/)
- [Dr. Seymour Rosen](https://www.pemphigus.org/doctors/dr-seymour-rosen/)
- [Dr. Bill Halmi](https://www.pemphigus.org/doctors/dr-bill-halmi/)
- [Dr. Norman Levine](https://www.pemphigus.org/doctors/dr-norman-levine/)
- [Dr. Alan Herford](https://www.pemphigus.org/doctors/dr-alan-herford/)
- [Dr. Errol Craig](https://www.pemphigus.org/doctors/dr-errol-craig/)
- [Dr. Nancy Anderson](https://www.pemphigus.org/doctors/dr-nancy-anderson/)
- [Dr. Ervin Epstein](https://www.pemphigus.org/doctors/dr-ervin-epstein/)
- [Dr. Ervin Epstein](https://www.pemphigus.org/doctors/dr-ervin-epstein-2/)
- [Dr. Anthony Aldave](https://www.pemphigus.org/doctors/dr-anthony-aldave/)
- [Dr. Mark Sherman](https://www.pemphigus.org/doctors/dr-mark-sherman/)
- [Dr. Nathaniel Neal](https://www.pemphigus.org/doctors/dr-nathaniel-neal/)
- [Dr. Robert Byers](https://www.pemphigus.org/doctors/dr-robert-byers/)
- [Dr. Rachel Abuav](https://www.pemphigus.org/doctors/dr-rachel-abuav/)
- [Dr. Vanessa Holland](https://www.pemphigus.org/doctors/dr-vanessa-holland/)
- [Dr. Noel Chiu](https://www.pemphigus.org/doctors/dr-noel-chiu/)
- [Dr. Peter Ehrnstrom](https://www.pemphigus.org/doctors/dr-peter-ehrnstrom/)
- [Dr. Craig Elmets](https://www.pemphigus.org/doctors/dr-craig-elmets/)
- [Dr. Criag Elmets](https://www.pemphigus.org/doctors/dr-criag-elmets/)
- [Dr. Peter Waite](https://www.pemphigus.org/doctors/dr-peter-waite/)
- [Dr. Russell Read](https://www.pemphigus.org/doctors/dr-russell-read/)
- [Dr. John Parker](https://www.pemphigus.org/doctors/dr-john-parker/)
- [Dr. Jeffrey Martin](https://www.pemphigus.org/doctors/dr-jeffrey-martin/)
- [Dr. Lauren Graham](https://www.pemphigus.org/doctors/dr-lauren-graham/)
- [Dr. Cheryl Armstrong](https://www.pemphigus.org/doctors/dr-cheryl-armstrong/)
- [Dr. Donna Pellowski](https://www.pemphigus.org/doctors/dr-donna-pellowski/)
- [Dr. David Swanson](https://www.pemphigus.org/doctors/dr-david-swanson/)
- [Dr. James Yiannias](https://www.pemphigus.org/doctors/dr-james-yiannias/)
- [Dr. Margaret Kessler](https://www.pemphigus.org/doctors/dr-margaret-kessler/)
- [Dr. Mandi Conway](https://www.pemphigus.org/doctors/dr-mandi-conway/)
- [Dr. Jeffrey Greene](https://www.pemphigus.org/doctors/dr-jeffrey-greene/)
- [Dr. Aaron Mangold](https://www.pemphigus.org/doctors/dr-aaron-mangold/)
- [Dr. Mark Pittelkow](https://www.pemphigus.org/doctors/dr-mark-pittelkow/)

## Venues

- [voco Chicago Downtown-Riverwalk](https://www.pemphigus.org/venue/voco-chicago/)
- [](https://www.pemphigus.org/venue/sample-venue/)
- [Zoom](https://www.pemphigus.org/venue/zoom/)

## Organizers

- [IPPF](https://www.pemphigus.org/organizer/ippf/)
- [Rüdiger Eming](https://www.pemphigus.org/organizer/rudiger-eming/)
- [Michael Hertl](https://www.pemphigus.org/organizer/michael-hertl/)

## Events

- [ERN Skin Webinar](https://www.pemphigus.org/event/ern-skin-webinar-october-2026/): Our next webinar co-organized by ERN-Skin AIBD thematic group and patient association IPPF is taking place on October 22nd, 2026 from 4:00 pm – 5:00 pm CET. Topic: "RCT rituximab versus cyclophosphamide in severe types of MMP", presented by Prof. Pascal Joly, from Centre de Référence Maladies Bulleuses Auto-immunes, Clinique dermatologique CHU de Rouen, Rouen, France. It will be chaired by
- [Scientific Seminar Series](https://www.pemphigus.org/event/scientific-seminar-series-november-2026/)
- [South Florida Virtual Support Group](https://www.pemphigus.org/event/south-florida-virtual-support-group-november-2026/): This is a virtual meeting and Zoom information will be sent upon registration.
- [Tri-State NY Virtual Support Group Meeting](https://www.pemphigus.org/event/tri-state-ny-virtual-support-group-meeting-2026-october/): This is a virtual meeting and the Zoom and phone call information will be sent upon registration.
- [In-Person Pacific Northwest Support Group Meeting](https://www.pemphigus.org/event/in-person-pacific-northwest-support-group-meeting-october-2026/): Join us for the next IN-PERSON Pacific Northwest Support Group Meeting! Connect In Person with Other Patients and Caregivers in the Pacific Northwest area at the Seattle Public Library on October 10th. Living with pemphigus or pemphigoid is hard enough, but when you feel alone it seems even harder. There's something special about connecting with
- [Scientific Seminar Series](https://www.pemphigus.org/event/scientific-seminar-series-october-2026/)
- [Mid-Atlantic Virtual Support Group](https://www.pemphigus.org/event/mid-atlantic-virtual-support-group-2026-september/): This is a virtual meeting and Zoom information will be sent upon registration.
- [Mid-Atlantic Virtual Support Group](https://www.pemphigus.org/event/mid-atlantic-virtual-support-group-june-2026/): This is a virtual meeting and Zoom information will be sent upon registration.
- [South Florida Virtual Support Group](https://www.pemphigus.org/event/south-florida-virtual-support-group-july-2026/): This is a virtual meeting and Zoom information will be sent upon registration.
- [Scientific Seminar Series](https://www.pemphigus.org/event/scientific-seminar-series-june-2026/)
- [Tri-State NY Virtual Support Group Meeting](https://www.pemphigus.org/event/tri-state-ny-virtual-support-group-meeting-may-2026/): This is a virtual meeting and the Zoom and phone call information will be sent upon registration.
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-may-2026/): "An Introduction to Pemphigus and Pemphigoid"
- [Pacific Northwest Virtual Support Group Meeting](https://www.pemphigus.org/event/pacific-northwest-virtual-support-group-meeting-july-2026/): This is a virtual meeting and the Zoom link and phone numbers for calling in will be sent upon registration.
- [Northern California In-Person Support Group Meeting](https://www.pemphigus.org/event/northern-california-in-person-support-group-meeting-may/): This is an in-person support group meeting held at the UC Davis. UC Davis- Aggie Square 4480 2nd Ave, Sacramento, CA 95817 Sacramento, CA 95816 Meeting Room- TBD Speaker: Dr. Emanual Maverakis, UC Davis Professor of Dermatology *Lunch for the meeting is sponsored by Emanual Maverakis, MD
- [Scientific Seminar Series](https://www.pemphigus.org/event/scientific-seminar-series-4/)
- [South Florida Virtual Support Group](https://www.pemphigus.org/event/south-florida-virtual-support-group-april-2026/): This is a virtual meeting and Zoom information will be sent upon registration.
- [In-Person Pacific Northwest Support Group Meeting](https://www.pemphigus.org/event/pacific-northwest-virtual-support-group-meeting-may-2026/): Join us for the first IN-PERSON Pacific Northwest Support Group Meeting! Connect In Person with Other Patients and Caregivers in the Pacific Northwest area at the Tacoma Public Library. Living with pemphigus or pemphigoid is hard enough, but when you feel alone it seems even harder. There's something special about connecting with people who really
- [2026 IPPF Scientific Symposium on Pemphigus & Pemphigoid](https://www.pemphigus.org/event/2026-ippf-scientific-symposium-lubeck/): The IPPF Scientific Symposium on Pemphigus and Pemphigoid brings together the global community advancing research and treatment for autoimmune blistering diseases — rare conditions in which the immune system attacks the skin and mucous membranes, causing painful blisters and erosions. Before new treatment therapies can be developed, investigators need to better estimate the prevalence of
- [2026 Patient Education Conference in Chicago, IL](https://www.pemphigus.org/event/2026-patient-education-conference-in-chicago-il/): Get ready for an unforgettable weekend filled with expert insights, empowering education, and meaningful connections with others who truly get it. Whether you’re newly diagnosed or have been living with pemphigus or pemphigoid for years, this is your chance to learn, share, and feel supported every step of the way.
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-4/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-7/)
- [Scientific Seminar Series](https://www.pemphigus.org/event/scientific-seminar-series-april-2026/)
- [California Virtual Support Group Meeting](https://www.pemphigus.org/event/california-virtual-support-group-meeting-2026-march/): This is a virtual meeting and the Google Meet information will be sent upon registration.
- [Scientific Seminar Series](https://www.pemphigus.org/event/scientific-seminar-series-march-2026/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-february-2026/)
- [Mid-Atlantic Virtual Support Group](https://www.pemphigus.org/event/mid-atlantic-virtual-support-group-march-2026/): This is a virtual meeting and Zoom information will be sent upon registration.
- [Scientific Seminar Series](https://www.pemphigus.org/event/scientific-seminar-series-feb-2026/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-jan-2026/)
- [Pacific Northwest Virtual Support Group Meeting](https://www.pemphigus.org/event/pacific-northwest-virtual-support-group-meeting-jan-2026/): This is a virtual meeting and the Zoom link and phone numbers for calling in will be sent upon registration.
- [South Florida Virtual Support Group](https://www.pemphigus.org/event/south-florida-virtual-support-group-3/): This is a virtual meeting and Zoom information will be sent upon registration.
- [Tri-State NY Virtual Support Group Meeting](https://www.pemphigus.org/event/tri-state-ny-virtual-support-group-meeting-december/): This is a virtual meeting and the Zoom and phone call information will be sent upon registration.
- [Mid-Atlantic Virtual Support Group](https://www.pemphigus.org/event/mid-atlantic-virtual-support-group-december/): This is a virtual meeting and Zoom information will be sent upon registration.
- [Scientific Seminar Series](https://www.pemphigus.org/event/scientific-seminar-series-december/)
- [South Florida Virtual Support Group](https://www.pemphigus.org/event/south-florida-virtual-support-group-november/): This is a virtual meeting and Zoom information will be sent upon registration.
- [Scientific Seminar Series](https://www.pemphigus.org/event/scientific-seminar-series-nov/)
- [Scientific Seminar Series](https://www.pemphigus.org/event/scientific-seminar-series-october/)
- [Tri-State NY Virtual Support Group Meeting](https://www.pemphigus.org/event/tri-state-ny-virtual-support-group-meeting-sep-2025/): This is a virtual meeting and the Zoom and phone call information will be sent upon registration.
- [Pacific Northwest Virtual Support Group Meeting](https://www.pemphigus.org/event/pacific-northwest-virtual-support-group-meeting-september/): This is a virtual meeting and the Zoom link and phone numbers for calling in will be sent upon registration.
- [Mid-Atlantic Virtual Support Group](https://www.pemphigus.org/event/mid-atlantic-virtual-support-group-september/): This is a virtual meeting and Zoom information will be sent upon registration.
- [Scientific Seminar Series](https://www.pemphigus.org/event/scientific-seminar-series-sep-2025/)
- [Pacific Northwest Virtual Support Group Meeting](https://www.pemphigus.org/event/pacific-northwest-virtual-support-group-meeting-aug-2025/): This is a virtual meeting and the Zoom link and phone numbers for calling in will be sent upon registration.
- [Northern California In-Person Support Group Meeting](https://www.pemphigus.org/event/northern-california-in-person-support-group-meeting-aug/): This is an in-person support group meeting held at the UC Davis Dermatology.
- [2025 Patient Education Conference in Atlanta, GA](https://www.pemphigus.org/event/international-pemphigus-and-pemphigoid-conference-2025/): Get ready for an unforgettable weekend filled with expert insights, empowering education, and meaningful connections with others who truly get it. Whether you’re newly diagnosed or have been living with pemphigus or pemphigoid for years, this is your chance to learn, share, and feel supported every step of the way.
- [Pacific Northwest Virtual Support Group Meeting](https://www.pemphigus.org/event/pacific-northwest-virtual-support-group-meeting-june/): This is a virtual meeting and the Zoom link and phone numbers for calling in will be sent upon registration.
- [South Florida Virtual Support Group](https://www.pemphigus.org/event/south-florida-virtual-support-group-july/): This is a virtual meeting and Zoom information will be sent upon registration.
- [Tri-State NY Virtual Support Group Meeting](https://www.pemphigus.org/event/tri-state-ny-virtual-support-group-meeting-july2025/): This is a virtual meeting and the Zoom and phone call information will be sent upon registration.
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-5-2/)
- [Scientific Seminar Series](https://www.pemphigus.org/event/scientific-seminar-series-3/)
- [Mid-Atlantic Virtual Support Group](https://www.pemphigus.org/event/mid-atlantic-virtual-support-group-6/): This is a virtual meeting and Zoom information will be sent upon registration.
- [Scientific Seminar Series](https://www.pemphigus.org/event/scientific-seminar-series-2/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-6/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-5/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-3/)
- [Pacific Northwest Virtual Support Group Meeting](https://www.pemphigus.org/event/pacific-northwest-virtual-support-group-meeting-2/): This is a virtual meeting and the Zoom link and phone numbers for calling in will be sent upon registration.
- [South Florida Virtual Support Group](https://www.pemphigus.org/event/south-florida-virtual-support-group-2/): This is a virtual meeting and Zoom information will be sent upon registration.
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-march-2025/)
- [Northern California In-Person Support Group Meeting](https://www.pemphigus.org/event/northern-california-support-group-meeting/): This is an in-person support group meeting held at the UC Davis Dermatology.
- [Pacific Northwest Virtual Support Group Meeting](https://www.pemphigus.org/event/pacific-northwest-virtual-support-group-meeting/): This is a virtual meeting and the Zoom link and phone numbers for calling in will be sent upon registration.
- [Scientific Seminar Series](https://www.pemphigus.org/event/scientific-seminar-series/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-feb/)
- [South Florida Virtual Support Group](https://www.pemphigus.org/event/south-florida-virtual-support-group/): This is a virtual meeting and Zoom information will be sent upon registration.
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-jan30/)
- [Boston Virtual Support Group](https://www.pemphigus.org/event/boston-virtual-support-group/): This is a virtual meeting and Zoom information will be sent upon registration.
- [Tri-State NY Virtual Support Group Meeting](https://www.pemphigus.org/event/tri-state-virtual-support-group/): This is a virtual meeting and the Zoom and phone call information will be sent upon registration.
- [IPPF Planned Giving Webinar](https://www.pemphigus.org/event/patient-education-webinar-9-30/)
- [Patient Education Conference](https://www.pemphigus.org/event/2024conference/)
- [California Virtual Support Group Meeting](https://www.pemphigus.org/event/ca-virtual-support-group/): This is a virtual meeting and the Google Meet information will be sent upon registration.
- [International Pemphigus and Pemphigoid Conference](https://www.pemphigus.org/event/2024-international-conference/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-6-10/)
- [2024 International Meeting](https://www.pemphigus.org/event/2024-international-meeting/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-5-9/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-5-21/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-3-19/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-april8/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-2-21/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-2-13/)
- [Scientific Seminar Series](https://www.pemphigus.org/event/scientific-seminar-series-feb5/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-2-5/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-1-25/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-11-9/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-7-16/)
- [Mid-Atlantic Virtual Support Group Meeting](https://www.pemphigus.org/event/mid-atlantic-virtual-support-group-meeting/): This is a virtual meeting and the Google Meet information will be sent upon registration.
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-3-28/)
- [Rare Disease Day 2023](https://www.pemphigus.org/event/rare-disease-day-2023/)
- [Rare Disease Week 2023](https://www.pemphigus.org/event/rare-disease-week-2023/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-april19/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-4-6/)
- [Patient Education Webinar](https://www.pemphigus.org/event/feburary8/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-2-16/)
- [2023 EL-PFDD Meeting on Pemphigus and Pemphigoid](https://www.pemphigus.org/event/2023-el-pfdd-meeting-on-pemphigus-and-pemphigoid/): Make your voice heard at the virtual Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting on pemphigus and pemphigoid (P/P). The meeting will bring together patients and care partners, U.S. Food and Drug Administration (FDA) representatives, pharmaceutical companies, doctors, and P/P researchers.
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-12-14/)
- [argenx BALLAD Bullous Pemphigoid Clinical Trial Webinar](https://www.pemphigus.org/event/argenx-webinar-11-15/)
- [2022 IPPF Virtual Patient Education Conference](https://www.pemphigus.org/event/2022-ippf-patient-conference/): Join the International Pemphigus & Pemphigoid Foundation as we invite leading bullous disease experts to present on research and trends, educate about disease management, and answer tough questions regarding the care and treatment of pemphigus and pemphigoid. The 2022 IPPF Patient Education Conference will be an exciting and educational event for any patient, caregiver, family
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-8-16/)
- [Scientific Seminar Series](https://www.pemphigus.org/event/scientific-seminar-sept5/)
- [Chicago Virtual Support Group Meeting](https://www.pemphigus.org/event/chicago-virtual-support-group/): This is a virtual meeting and Google Meet information will be sent upon registration.
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-may19/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-apr12/)
- [Scientific Seminar Webinar Series](https://www.pemphigus.org/event/scientific-seminar-webinar-series_may2/)
- [Austin Virtual Support Group](https://www.pemphigus.org/event/austin-virtual-support-group/): This is a virtual meeting and the Zoom and phone call information will be sent upon registration.
- [UNC Autoimmune Clinics Virtual Peer Support Session](https://www.pemphigus.org/event/unc_support_feb/): This is a virtual meeting for North Carolina residents.
- [Virtual Rare Disease Week 2022](https://www.pemphigus.org/event/rare-disease-week-on-capitol-hill-2022/)
- [Patient Education Webinar](https://www.pemphigus.org/event/patient-education-webinar-feb9/)

## Categories

- [PemPress - All Posts](https://www.pemphigus.org/category/pempress/)
- [Advocacy](https://www.pemphigus.org/category/pempress/advocacy/)
- [Foundation Updates](https://www.pemphigus.org/category/pempress/foundation-updates/)
- [Patient Support](https://www.pemphigus.org/category/pempress/patient-support/)
- [Awareness](https://www.pemphigus.org/category/pempress/awareness/)
- [Research](https://www.pemphigus.org/category/pempress/research/)
- [Coaches' Corner](https://www.pemphigus.org/category/pempress/coaches-corner/)
- [archive](https://www.pemphigus.org/category/archive/)

## Tags

- [460](https://www.pemphigus.org/tag/460/)
- [4998](https://www.pemphigus.org/tag/4998/)
- [5225](https://www.pemphigus.org/tag/5225/)
- [Advocacy](https://www.pemphigus.org/tag/advocacy/)
- [Bill](https://www.pemphigus.org/tag/bill/)
- [congress](https://www.pemphigus.org/tag/congress/)
- [house](https://www.pemphigus.org/tag/house/)
- [Representative](https://www.pemphigus.org/tag/representative/)
- [Resolute](https://www.pemphigus.org/tag/resolute/)
- [Senate](https://www.pemphigus.org/tag/senate/)
- [disease](https://www.pemphigus.org/tag/disease/)
- [FDA](https://www.pemphigus.org/tag/fda/)
- [NIH](https://www.pemphigus.org/tag/nih/)
- [NORD](https://www.pemphigus.org/tag/nord/)
- [rare](https://www.pemphigus.org/tag/rare/)
- [awareness](https://www.pemphigus.org/tag/awareness-3/)
- [foundation](https://www.pemphigus.org/tag/foundation/)
- [information](https://www.pemphigus.org/tag/information/)
- [news](https://www.pemphigus.org/tag/news/)
- [pempress](https://www.pemphigus.org/tag/pempress/)
- [support](https://www.pemphigus.org/tag/support/)
- [clinical trial](https://www.pemphigus.org/tag/clinical-trial/)
- [Orphan Drug Act](https://www.pemphigus.org/tag/orphan-drug-act/)
- [orphan drugs](https://www.pemphigus.org/tag/orphan-drugs/)
- [dental](https://www.pemphigus.org/tag/dental/)
- [dental school](https://www.pemphigus.org/tag/dental-school/)
- [patient educator](https://www.pemphigus.org/tag/patient-educator/)
- [pemphigus vulgaris](https://www.pemphigus.org/tag/pemphigus-vulgaris/)
- [university](https://www.pemphigus.org/tag/university/)
- [legislature](https://www.pemphigus.org/tag/legislature/)
- [pemphigoid](https://www.pemphigus.org/tag/pemphigoid-2/)
- [pemphigus](https://www.pemphigus.org/tag/pemphigus-2/)
- [Washington](https://www.pemphigus.org/tag/washington/)
- [donate](https://www.pemphigus.org/tag/donate/)
- [donor](https://www.pemphigus.org/tag/donor/)
- [giving](https://www.pemphigus.org/tag/giving/)
- [givingtuesday](https://www.pemphigus.org/tag/givingtuesday/)
- [philanthropy](https://www.pemphigus.org/tag/philanthropy/)
- [#healourskin](https://www.pemphigus.org/tag/healourskin/)
- [#raredisease](https://www.pemphigus.org/tag/raredisease/)
- [facebook](https://www.pemphigus.org/tag/facebook/)
- [hashtag](https://www.pemphigus.org/tag/hashtag/)
- [instagram](https://www.pemphigus.org/tag/instagram/)
- [rare disease](https://www.pemphigus.org/tag/rare-disease/)
- [social media](https://www.pemphigus.org/tag/social-media/)
- [twitter](https://www.pemphigus.org/tag/twitter/)
- [education](https://www.pemphigus.org/tag/education/)
- [anxiety](https://www.pemphigus.org/tag/anxiety/)
- [autoimmune](https://www.pemphigus.org/tag/autoimmune/)
- [breathing](https://www.pemphigus.org/tag/breathing/)
- [de-stress](https://www.pemphigus.org/tag/de-stress/)
- [hobbies](https://www.pemphigus.org/tag/hobbies/)
- [relax](https://www.pemphigus.org/tag/relax/)
- [stress](https://www.pemphigus.org/tag/stress/)
- [walk](https://www.pemphigus.org/tag/walk/)
- [yoga](https://www.pemphigus.org/tag/yoga/)
- [biopsy](https://www.pemphigus.org/tag/biopsy/)
- [diagnosis](https://www.pemphigus.org/tag/diagnosis/)
- [mouth sores](https://www.pemphigus.org/tag/mouth-sores/)
- [oral lesions](https://www.pemphigus.org/tag/oral-lesions/)
- [rituxan](https://www.pemphigus.org/tag/rituxan/)
- [rituximab](https://www.pemphigus.org/tag/rituximab/)
- [home infusion](https://www.pemphigus.org/tag/home-infusion/)
- [ivig](https://www.pemphigus.org/tag/ivig/)
- [capitol hill](https://www.pemphigus.org/tag/capitol-hill/)
- [National Institutes of Health](https://www.pemphigus.org/tag/national-institutes-of-health/)
- [depression](https://www.pemphigus.org/tag/depression/)
- [patient story](https://www.pemphigus.org/tag/patient-story/)
- [Penn Vet](https://www.pemphigus.org/tag/penn-vet/)
- [research](https://www.pemphigus.org/tag/research/)
- [government](https://www.pemphigus.org/tag/government/)
- [Oklahoma](https://www.pemphigus.org/tag/oklahoma/)
- [ADA](https://www.pemphigus.org/tag/ada/)
- [dental conference](https://www.pemphigus.org/tag/dental-conference/)
- [GNYDM](https://www.pemphigus.org/tag/gnydm/)
- [syms](https://www.pemphigus.org/tag/syms/)
- [boxer](https://www.pemphigus.org/tag/boxer/)
- [brownley](https://www.pemphigus.org/tag/brownley/)
- [feinstein](https://www.pemphigus.org/tag/feinstein/)
- [holmes norton](https://www.pemphigus.org/tag/holmes-norton/)
- [matsui](https://www.pemphigus.org/tag/matsui/)
- [austin](https://www.pemphigus.org/tag/austin/)
- [rare disease day](https://www.pemphigus.org/tag/rare-disease-day/)
- [diet](https://www.pemphigus.org/tag/diet/)
- [eating](https://www.pemphigus.org/tag/eating/)
- [food](https://www.pemphigus.org/tag/food/)
- [garlic](https://www.pemphigus.org/tag/garlic/)
- [nutrition](https://www.pemphigus.org/tag/nutrition/)
- [onion](https://www.pemphigus.org/tag/onion/)
- [soft foods](https://www.pemphigus.org/tag/soft-foods/)
- [#PutItOnYourRadar](https://www.pemphigus.org/tag/putitonyourradar/)
- [dentist](https://www.pemphigus.org/tag/dentist/)
- [#CuresNow](https://www.pemphigus.org/tag/curesnow/)
- [chemotherapy](https://www.pemphigus.org/tag/chemotherapy/)
- [immune thrombocytopenia](https://www.pemphigus.org/tag/immune-thrombocytopenia/)
- [Open Act](https://www.pemphigus.org/tag/open-act/)
- [eastern medicine](https://www.pemphigus.org/tag/eastern-medicine/)
- [enhance immune system](https://www.pemphigus.org/tag/enhance-immune-system/)
- [holistic](https://www.pemphigus.org/tag/holistic/)
- [immune system](https://www.pemphigus.org/tag/immune-system/)
- [natural](https://www.pemphigus.org/tag/natural/)
- [remedy](https://www.pemphigus.org/tag/remedy/)
- [treatment](https://www.pemphigus.org/tag/treatment/)
- [western medicine](https://www.pemphigus.org/tag/western-medicine/)
- [patients](https://www.pemphigus.org/tag/patients/)
- [donation](https://www.pemphigus.org/tag/donation/)
- [employer](https://www.pemphigus.org/tag/employer/)
- [matching](https://www.pemphigus.org/tag/matching/)
- [dental implants](https://www.pemphigus.org/tag/dental-implants/)
- [disability](https://www.pemphigus.org/tag/disability/)
- [help](https://www.pemphigus.org/tag/help/)
- [social security](https://www.pemphigus.org/tag/social-security/)
- [antibodies](https://www.pemphigus.org/tag/antibodies/)
- [cells](https://www.pemphigus.org/tag/cells/)
- [DNA](https://www.pemphigus.org/tag/dna/)
- [IgG4](https://www.pemphigus.org/tag/igg4/)
- [coronavirus](https://www.pemphigus.org/tag/coronavirus/)
- [covid-19](https://www.pemphigus.org/tag/covid-19/)
- [resources](https://www.pemphigus.org/tag/resources/)
- [caregiver](https://www.pemphigus.org/tag/caregiver/)
- [delayed diagnosis](https://www.pemphigus.org/tag/delayed-diagnosis/)
- [mucous membrane pemphigoid](https://www.pemphigus.org/tag/mucous-membrane-pemphigoid/)
- [sjogren's](https://www.pemphigus.org/tag/sjogrens/)
- [patient conference](https://www.pemphigus.org/tag/patient-conference/)
- [community](https://www.pemphigus.org/tag/community/)
- [ippf](https://www.pemphigus.org/tag/ippf/)
- [outreach](https://www.pemphigus.org/tag/outreach/)
- [21st century cures](https://www.pemphigus.org/tag/21st-century-cures/)
- [gestational pemphigoid](https://www.pemphigus.org/tag/gestational-pemphigoid/)
- [pemphigoid gestationis](https://www.pemphigus.org/tag/pemphigoid-gestationis/)
- [postpartum](https://www.pemphigus.org/tag/postpartum/)
- [pregnancy](https://www.pemphigus.org/tag/pregnancy/)
- [dental students](https://www.pemphigus.org/tag/dental-students/)
- [patient educators](https://www.pemphigus.org/tag/patient-educators/)
- [EURODIS](https://www.pemphigus.org/tag/eurodis/)
- [grants](https://www.pemphigus.org/tag/grants/)
- [2016](https://www.pemphigus.org/tag/2016/)
- [year in review](https://www.pemphigus.org/tag/year-in-review/)
- [family](https://www.pemphigus.org/tag/family/)
- [pemphigus foliaceus](https://www.pemphigus.org/tag/pemphigus-foliaceus/)
- [Prednisone](https://www.pemphigus.org/tag/prednisone/)
- [cancer](https://www.pemphigus.org/tag/cancer/)
- [boston university](https://www.pemphigus.org/tag/boston-university/)
- [Genentech](https://www.pemphigus.org/tag/genentech/)
- [coping](https://www.pemphigus.org/tag/coping/)
- [strategies](https://www.pemphigus.org/tag/strategies/)
- [bullous pemphigoid](https://www.pemphigus.org/tag/bullous-pemphigoid/)
- [self-care](https://www.pemphigus.org/tag/self-care/)
- [wound care](https://www.pemphigus.org/tag/wound-care/)
- [drug](https://www.pemphigus.org/tag/drug/)
- [Syntimmune](https://www.pemphigus.org/tag/syntimmune/)
- [ask a coach](https://www.pemphigus.org/tag/ask-a-coach/)
- [coach](https://www.pemphigus.org/tag/coach/)
- [pharmaceuticals](https://www.pemphigus.org/tag/pharmaceuticals/)
- [Sy Syms Foundation](https://www.pemphigus.org/tag/sy-syms-foundation/)
- [bertilimumab](https://www.pemphigus.org/tag/bertilimumab/)
- [immune pharmaceuticals](https://www.pemphigus.org/tag/immune-pharmaceuticals/)
- [conference](https://www.pemphigus.org/tag/conference/)
- [clinical trails](https://www.pemphigus.org/tag/clinical-trails/)
- [Principia Biopharma](https://www.pemphigus.org/tag/principia-biopharma/)
- [PRN1008](https://www.pemphigus.org/tag/prn1008/)
- [SYNT001](https://www.pemphigus.org/tag/synt001/)
- [2018](https://www.pemphigus.org/tag/2018/)
- [dermatology](https://www.pemphigus.org/tag/dermatology/)
- [Roche](https://www.pemphigus.org/tag/roche/)
- [akari therapeutics](https://www.pemphigus.org/tag/akari-therapeutics/)
- [patient](https://www.pemphigus.org/tag/patient/)
- [registry](https://www.pemphigus.org/tag/registry/)
- [Trio Health](https://www.pemphigus.org/tag/trio-health/)
- [award](https://www.pemphigus.org/tag/award/)
- [Harvard Medical School](https://www.pemphigus.org/tag/harvard-medical-school/)
- [recognition](https://www.pemphigus.org/tag/recognition/)
- [dental student](https://www.pemphigus.org/tag/dental-student/)
- [UNC](https://www.pemphigus.org/tag/unc/)
- [peer health coach](https://www.pemphigus.org/tag/peer-health-coach/)
- [doctors](https://www.pemphigus.org/tag/doctors/)
- [patient journey](https://www.pemphigus.org/tag/patient-journey/)
- [strength](https://www.pemphigus.org/tag/strength/)
- [cellcept](https://www.pemphigus.org/tag/cellcept/)
- [caart](https://www.pemphigus.org/tag/caart/)
- [cabaletta bio](https://www.pemphigus.org/tag/cabaletta-bio/)
- [mucosal pemphigus vulgaris](https://www.pemphigus.org/tag/mucosal-pemphigus-vulgaris/)
- [treatement](https://www.pemphigus.org/tag/treatement/)
- [PEMPHIX](https://www.pemphigus.org/tag/pemphix/)
- [argenx](https://www.pemphigus.org/tag/argenx/)
- [biotechnology](https://www.pemphigus.org/tag/biotechnology/)
- [orphan drug designation](https://www.pemphigus.org/tag/orphan-drug-designation/)
- [action](https://www.pemphigus.org/tag/action/)
- [fast track designation](https://www.pemphigus.org/tag/fast-track-designation/)
- [minerals](https://www.pemphigus.org/tag/minerals/)
- [vitamins](https://www.pemphigus.org/tag/vitamins/)
- [ENT](https://www.pemphigus.org/tag/ent/)
- [mouth](https://www.pemphigus.org/tag/mouth/)
- [oral](https://www.pemphigus.org/tag/oral/)
- [blood](https://www.pemphigus.org/tag/blood/)
- [coaches corner](https://www.pemphigus.org/tag/coaches-corner/)
- [give](https://www.pemphigus.org/tag/give/)
- [red cross](https://www.pemphigus.org/tag/red-cross/)
- [tips](https://www.pemphigus.org/tag/tips/)
- [caffeine](https://www.pemphigus.org/tag/caffeine/)
- [exercise](https://www.pemphigus.org/tag/exercise/)
- [sleep](https://www.pemphigus.org/tag/sleep/)
- [activity](https://www.pemphigus.org/tag/activity/)
- [avoid](https://www.pemphigus.org/tag/avoid/)
- [blister](https://www.pemphigus.org/tag/blister/)
- [lesion](https://www.pemphigus.org/tag/lesion/)
- [shower](https://www.pemphigus.org/tag/shower/)
- [sun](https://www.pemphigus.org/tag/sun/)
- [trauma](https://www.pemphigus.org/tag/trauma/)
- [bathing](https://www.pemphigus.org/tag/bathing/)
- [lesions](https://www.pemphigus.org/tag/lesions/)
- [nosebleed](https://www.pemphigus.org/tag/nosebleed/)
- [scalp](https://www.pemphigus.org/tag/scalp/)
- [sticking](https://www.pemphigus.org/tag/sticking/)
- [swallowing](https://www.pemphigus.org/tag/swallowing/)
- [symptom](https://www.pemphigus.org/tag/symptom/)
- [systemic](https://www.pemphigus.org/tag/systemic/)
- [Topical](https://www.pemphigus.org/tag/topical/)
- [communication](https://www.pemphigus.org/tag/communication/)
- [dermatologist](https://www.pemphigus.org/tag/dermatologist/)
- [internist](https://www.pemphigus.org/tag/internist/)
- [medication](https://www.pemphigus.org/tag/medication/)
- [OB/GYN](https://www.pemphigus.org/tag/obgyn/)
- [ophthalmologist](https://www.pemphigus.org/tag/ophthalmologist/)
- [specialist](https://www.pemphigus.org/tag/specialist/)
- [checkups](https://www.pemphigus.org/tag/checkups/)
- [cheeks](https://www.pemphigus.org/tag/cheeks/)
- [citrus](https://www.pemphigus.org/tag/citrus/)
- [gums](https://www.pemphigus.org/tag/gums/)
- [health](https://www.pemphigus.org/tag/health/)
- [mouthwash](https://www.pemphigus.org/tag/mouthwash/)
- [soft](https://www.pemphigus.org/tag/soft/)
- [straws](https://www.pemphigus.org/tag/straws/)
- [tongue](https://www.pemphigus.org/tag/tongue/)
- [waterpik](https://www.pemphigus.org/tag/waterpik/)
- [group](https://www.pemphigus.org/tag/group/)
- [helplessness](https://www.pemphigus.org/tag/helplessness/)
- [husband](https://www.pemphigus.org/tag/husband/)
- [pain](https://www.pemphigus.org/tag/pain/)
- [wife](https://www.pemphigus.org/tag/wife/)
- [coaches](https://www.pemphigus.org/tag/coaches/)
- [corner](https://www.pemphigus.org/tag/corner/)
- [Flare](https://www.pemphigus.org/tag/flare/)
- [peer](https://www.pemphigus.org/tag/peer/)
- [remission](https://www.pemphigus.org/tag/remission/)
- [Doctor](https://www.pemphigus.org/tag/doctor/)
- [history](https://www.pemphigus.org/tag/history/)
- [identification](https://www.pemphigus.org/tag/identification/)
- [medical](https://www.pemphigus.org/tag/medical/)
- [medications](https://www.pemphigus.org/tag/medications/)
- [referral](https://www.pemphigus.org/tag/referral/)
- [traveling](https://www.pemphigus.org/tag/traveling/)
- [prepare](https://www.pemphigus.org/tag/prepare/)
- [visit appointment](https://www.pemphigus.org/tag/visit-appointment/)
- [employment](https://www.pemphigus.org/tag/employment/)
- [calm](https://www.pemphigus.org/tag/calm/)
- [disease activity](https://www.pemphigus.org/tag/disease-activity/)
- [meditation](https://www.pemphigus.org/tag/meditation/)
- [hats](https://www.pemphigus.org/tag/hats/)
- [skin disease](https://www.pemphigus.org/tag/skin-disease/)
- [skin protection](https://www.pemphigus.org/tag/skin-protection/)
- [SPF](https://www.pemphigus.org/tag/spf/)
- [sun exposure](https://www.pemphigus.org/tag/sun-exposure/)
- [sun protection](https://www.pemphigus.org/tag/sun-protection/)
- [sun rays](https://www.pemphigus.org/tag/sun-rays/)
- [sunscreen](https://www.pemphigus.org/tag/sunscreen/)
- [UV](https://www.pemphigus.org/tag/uv/)
- [empowered](https://www.pemphigus.org/tag/empowered/)
- [self-esteem](https://www.pemphigus.org/tag/self-esteem/)
- [insurance](https://www.pemphigus.org/tag/insurance/)
- [moving](https://www.pemphigus.org/tag/moving/)
- [new state](https://www.pemphigus.org/tag/new-state/)
- [physician](https://www.pemphigus.org/tag/physician/)
- [blisters](https://www.pemphigus.org/tag/blisters/)
- [fatiguwe](https://www.pemphigus.org/tag/fatiguwe/)
- [frequency](https://www.pemphigus.org/tag/frequency/)
- [improvement](https://www.pemphigus.org/tag/improvement/)
- [improving](https://www.pemphigus.org/tag/improving/)
- [talk to your doctor](https://www.pemphigus.org/tag/talk-to-your-doctor/)
- [appeal](https://www.pemphigus.org/tag/appeal/)
- [denial](https://www.pemphigus.org/tag/denial/)
- [side effects](https://www.pemphigus.org/tag/side-effects/)
- [steroid](https://www.pemphigus.org/tag/steroid/)
- [Internists](https://www.pemphigus.org/tag/internists/)
- [Opthalmologist](https://www.pemphigus.org/tag/opthalmologist/)
- [primary care](https://www.pemphigus.org/tag/primary-care/)
- [Rheumatologist](https://www.pemphigus.org/tag/rheumatologist/)
- [customer service](https://www.pemphigus.org/tag/customer-service/)
- [Labs](https://www.pemphigus.org/tag/labs/)
- [corticosteroid](https://www.pemphigus.org/tag/corticosteroid/)
- [hair](https://www.pemphigus.org/tag/hair/)
- [taper](https://www.pemphigus.org/tag/taper/)
- [emergency](https://www.pemphigus.org/tag/emergency/)
- [phone](https://www.pemphigus.org/tag/phone/)
- [technology](https://www.pemphigus.org/tag/technology/)
- [Taiwan](https://www.pemphigus.org/tag/taiwan/)
- [National Health Insurance (NHI)](https://www.pemphigus.org/tag/national-health-insurance-nhi/)
- [executive director](https://www.pemphigus.org/tag/executive-director/)
- [Kenya](https://www.pemphigus.org/tag/kenya/)
- [heroes](https://www.pemphigus.org/tag/heroes/)
- [inspiring hope](https://www.pemphigus.org/tag/inspiring-hope/)
- [rare disease week](https://www.pemphigus.org/tag/rare-disease-week/)
- [future](https://www.pemphigus.org/tag/future/)
- [GlobalSkin](https://www.pemphigus.org/tag/globalskin/)
- [GRIDD](https://www.pemphigus.org/tag/gridd/)
- [Delphi](https://www.pemphigus.org/tag/delphi/)
- [survey](https://www.pemphigus.org/tag/survey/)
- [forum](https://www.pemphigus.org/tag/forum/)
- [Rare Action Network](https://www.pemphigus.org/tag/rare-action-network/)
- [American Rescue Plan](https://www.pemphigus.org/tag/american-rescue-plan/)
- [pandemic](https://www.pemphigus.org/tag/pandemic/)
- [bullous diseases](https://www.pemphigus.org/tag/bullous-diseases/)
- [USC](https://www.pemphigus.org/tag/usc/)
- [study](https://www.pemphigus.org/tag/study/)
- [publications](https://www.pemphigus.org/tag/publications/)
- [medicaid](https://www.pemphigus.org/tag/medicaid/)
- [MACPAC](https://www.pemphigus.org/tag/macpac/)
- [Haystack Project](https://www.pemphigus.org/tag/haystack-project/)
- [rare patient](https://www.pemphigus.org/tag/rare-patient/)
- [nomacopan](https://www.pemphigus.org/tag/nomacopan/)
- [board](https://www.pemphigus.org/tag/board/)
- [directors](https://www.pemphigus.org/tag/directors/)
- [oral health](https://www.pemphigus.org/tag/oral-health/)
- [rare disorders](https://www.pemphigus.org/tag/rare-disorders/)
- [webinar](https://www.pemphigus.org/tag/webinar/)
- [scientific](https://www.pemphigus.org/tag/scientific/)
- [symposium](https://www.pemphigus.org/tag/symposium/)
- [czi](https://www.pemphigus.org/tag/czi/)
- [grant](https://www.pemphigus.org/tag/grant/)
- [chan](https://www.pemphigus.org/tag/chan/)
- [zuckerberg](https://www.pemphigus.org/tag/zuckerberg/)
- [legislation](https://www.pemphigus.org/tag/legislation/)
- [EveryLife Foundation](https://www.pemphigus.org/tag/everylife-foundation/)
- [AIBD](https://www.pemphigus.org/tag/aibd/)
- [vaccine](https://www.pemphigus.org/tag/vaccine/)
- [JAMA](https://www.pemphigus.org/tag/jama/)
- [coalition](https://www.pemphigus.org/tag/coalition/)
- [WHO](https://www.pemphigus.org/tag/who/)
- [westernU](https://www.pemphigus.org/tag/westernu/)
- [patient assistance programs](https://www.pemphigus.org/tag/patient-assistance-programs/)
- [healthcare](https://www.pemphigus.org/tag/healthcare/)
- [diagnostic testing](https://www.pemphigus.org/tag/diagnostic-testing/)
- [Quest for Health Equity](https://www.pemphigus.org/tag/quest-for-health-equity/)
- [guide](https://www.pemphigus.org/tag/guide/)
- [medically reviewed](https://www.pemphigus.org/tag/medically-reviewed/)
- [resource](https://www.pemphigus.org/tag/resource/)
- [biosimilar](https://www.pemphigus.org/tag/biosimilar/)
- [PAN Foundation](https://www.pemphigus.org/tag/pan-foundation/)
- [assistance](https://www.pemphigus.org/tag/assistance/)
- [treatments](https://www.pemphigus.org/tag/treatments/)
- [dupixent](https://www.pemphigus.org/tag/dupixent/)
- [dupilumab](https://www.pemphigus.org/tag/dupilumab/)
- [Regeneron](https://www.pemphigus.org/tag/regeneron/)
- [clinical trials](https://www.pemphigus.org/tag/clinical-trials/)
- [Work](https://www.pemphigus.org/tag/work/)
- [Intimacy](https://www.pemphigus.org/tag/intimacy/)
- [mental health](https://www.pemphigus.org/tag/mental-health/)
- [volunteer](https://www.pemphigus.org/tag/volunteer/)
- [triggers](https://www.pemphigus.org/tag/triggers/)
- [American South Asian Network](https://www.pemphigus.org/tag/american-south-asian-network/)

## Speciality

- [Dermatology](https://www.pemphigus.org/speciality/dermatology/)
- [Dental](https://www.pemphigus.org/speciality/dental/)
- [Ophthalmology](https://www.pemphigus.org/speciality/ophthalmology/)
- [Internal Medicine](https://www.pemphigus.org/speciality/internal-medicine/)
- [Oral Medicine](https://www.pemphigus.org/speciality/oral-medicine/)
- [Rheumatology](https://www.pemphigus.org/speciality/rheumatology/)
- [Oral Pathology](https://www.pemphigus.org/speciality/oral-pathology/)
- [Other](https://www.pemphigus.org/speciality/other/)
- [ENT](https://www.pemphigus.org/speciality/ent/)

## Tags

- [Dermatology](https://www.pemphigus.org/doctors_tags/dermatology/)
- [Dental](https://www.pemphigus.org/doctors_tags/dental/)
- [Ophthalmology](https://www.pemphigus.org/doctors_tags/ophthalmology/)
- [Internal Medicine](https://www.pemphigus.org/doctors_tags/internal-medicine/)
- [ENT](https://www.pemphigus.org/doctors_tags/ent/)
- [Oral Medicine](https://www.pemphigus.org/doctors_tags/oral-medicine/)
- [Rheumatology](https://www.pemphigus.org/doctors_tags/rheumatology/)
- [Family Medicine](https://www.pemphigus.org/doctors_tags/family-medicine/)
- [Oncology](https://www.pemphigus.org/doctors_tags/oncology/)
- [Oral Pathology](https://www.pemphigus.org/doctors_tags/oral-pathology/)
- [Optometry](https://www.pemphigus.org/doctors_tags/optometry/)
- [Gynecology](https://www.pemphigus.org/doctors_tags/gynecology/)
- [Ocular Immunology](https://www.pemphigus.org/doctors_tags/ocular-immunology/)
- [Other](https://www.pemphigus.org/doctors_tags/other/)

## Event Categories

- [Support Groups](https://www.pemphigus.org/events/category/support-groups/)
- [Patient Education Webinars](https://www.pemphigus.org/events/category/patient-education-webinars/)
- [Patient Conferences](https://www.pemphigus.org/events/category/patient-conferences/)
- [Scientific Conferences](https://www.pemphigus.org/events/category/scientific-conferences/)
- [Scientific Seminar Webinar Series](https://www.pemphigus.org/events/category/scientific-seminar-webinar-series/)