SCROLL FOR MORE

Find a doctor

Looking for a doctor who knows how to treat pemphigus or pemphigoid? Find qualified medical and dental professionals in your area. Search our directory and filter by specialty.

Find a doctor

Ask a coach

Peer Coaches offer the opportunity to communicate with specific members of the IPPF community who have pemphigus and pemphigoid. Peer Coaches are volunteers who have learned how to manage their diseases. They are willing to share their personal tips and tricks, as well as IPPF resources and educational materials that help people affected by pemphigus and pemphigoid to have meaningful discussions with their healthcare teams.

Ask a coach

P/P Research

Natural History Study
Natural History Study

Sponsored by NORD and the US FDA, the IPPF Natural History Study collects patient data for analysis in research studies.The more data we can collect, the better the information we can share with researchers. This leads to better treatments, earlier diagnosis, and poentially – A CURE!
EL-PFDD
Externally-Led Patient Focused Drug Development Meeting on P/P

This meeting brought together patients and care partners, FDA representatives, pharmaceutical companies, doctors, and researchers.
Clinical Trials
Clinical Trials

Find out about current clinical trials related to P/P and how to determine if they’re right for you.
Publications
White Paper

Elevating Awareness of the Pressing Needs of the Pemphigus Community
IPPF Research

Advocacy

The IPPF develops relationships with congressional representatives and other support organizations in order to advocate for favorable state and federal legislation, research funding, and policies or regulations that benefit our community at large.

Learn more about advocacy

Awareness

Our Awareness Program seeks to accelerate diagnosis times by conducting outreach to the dental and medical communities. We focus on the importance of obtaining a correct biopsy for undiagnosed patients, which is the first step toward improving patient quality of life.

Biopsies Save Lives

Tell us your story!

Halima Image
My symptoms started at the beginning of April 2018. My mouth was inflamed, and I had painful blisters on both sides that made it very difficult to eat or drink. I had no idea what was causing my symptoms, and… read more
Halima Patient
Rudy Image
My journey with pemphigus foliaceus (PF) began in 2009; however, my symptoms began in 2008. I have been in remission since 2016. It has been a long journey, and I have encountered many bumps and detours along the way. I… read more
Rudy Patient
Mei Ling Image
I’ve been a peer health coach (PHC) with the IPPF since 2012. However, if you had told me back in early 2001 that this is what I would be doing today, I never would have believed you. I had never… read more
Mei Ling Patient
Minatallah Image
When applying to dental school, my initial feelings about dentistry centered on a yearning to help others. Our prerequisite courses required us to be involved within the community and provide for those in need of dental care. This helped open… read more
Minatallah Patient
Linda Image
My journey began in August, 2017. I had a slight rash on my lower back that was extremely itchy. When I went to see my primary care doctor for my annual physical, I mentioned the rash, but he never looked… read more
Linda Patient
Kathleena Image
When I was first diagnosed with pemphigus vulgaris (PV), I didn’t have the slightest clue what those strange words meant or how this disease would impact my life. The physician who finally diagnosed me handed me a description of the… read more
Kathleena Patient
Fred Image
It was January 2007, and I was sitting across the desk from the second dermatologist I had seen in five months. For the second time, I was told that my condition was probably “seborrheic something-or-other” and was prescribed an alcohol-based… read more
Fred Patient
Toby Image
When I was diagnosed with pemphigus vulgaris (PV) in late 2010, like most patients I’d never heard of the disease. Also, like most, I’d endured about six months of worsening symptoms before finding a doctor who was able to help… read more
Toby Patient
Share your story Read more stories
Previous
    Next

    Upcoming Events

    Mid-Atlantic Virtual Support Group Image
    Tuesday, June 9, 2026 7:00pm (PDT)
    Mid-Atlantic Virtual Support Group
    Topic: June 9th Mid-Atlantic Virtual Support Group Meeting

    This is a virtual meeting and Zoom information will be sent upon registration.

    Read More
    South Florida Virtual Support Group Image
    Sunday, July 12, 2026 2:00pm (PDT)
    South Florida Virtual Support Group
    Topic: July 12 South Florida Virtual Support Group Meeting

    This is a virtual meeting and Zoom information will be sent upon registration.

    Read More
    Pacific Northwest Virtual Support Group Meeting Image
    Tuesday, July 28, 2026 6:00pm (PDT)
    Pacific Northwest Virtual Support Group Meeting
    Topic: July 28 Virtual Pacific Northwest Support Group Meeting

    This is a virtual meeting and the Zoom link and phone numbers for calling in will be sent upon…

    Read More
    See all upcoming events

    PemPress

    Speaking Up for the IPPF Community at the 2026 Coalition of Skin Diseases Hill Day  Image

    Tuesday, June 2, 2026

    Speaking Up for the IPPF Community at the 2026 Coalition of Skin Diseases Hill Day 
    Posted by Rebecca Strong

    By Becky Strong There’s something that happens when you walk the halls of Congress and say, out loud,” I’m…

    Read more
    Finding Meaning in the Mess Image

    Tuesday, May 12, 2026

    Finding Meaning in the Mess
    Posted by Rebecca Strong

    While pemphigus and pemphigoid bring their own challenges, they can also be an opportunity for growth, resilience, and connection.

    Read more
    Travel Tips for People with Pemphigus or Pemphigoid Image

    Tuesday, March 10, 2026

    Travel Tips for People with Pemphigus or Pemphigoid
    Posted by Rebecca Strong

    For many living with pemphigus and pemphigoid, travel can be a powerful reminder that life is still full of…

    Read more
     Staying Connected, Even When It’s Hard Image

    Tuesday, February 10, 2026

     Staying Connected, Even When It’s Hard
    Posted by Rebecca Strong

    Staying connected – even in small ways – can have a big impact on your emotional well-being. If you…

    Read more
    Mental Health with a Rare Disease Image

    Tuesday, January 13, 2026

    Mental Health with a Rare Disease
    Posted by Rebecca Strong

    Living with a rare disease can bring a unique set of challenges, many of which extend far beyond the…

    Read more
    Your Relationships Matter: Let’s Talk About Intimacy Image

    Tuesday, December 16, 2025

    Your Relationships Matter: Let’s Talk About Intimacy
    Posted by Rebecca Strong

    Living with pemphigus and pemphigoid comes with many challenges – some visible, and others deeply personal.

    Read more
    When You’re the Caregiver and a Patient Image

    Tuesday, November 18, 2025

    When You’re the Caregiver and a Patient
    Posted by Rebecca Strong

    When both caring for someone and being the person receiving care, effective communication and a clear understanding of roles…

    Read more
    Managing Work When You’re Managing a Disease Image

    Tuesday, October 14, 2025

    Managing Work When You’re Managing a Disease
    Posted by Rebecca Strong

    Whether you’re working full-time, part-time, or from home, pemphigus or pemphigoid can make staying productive difficult.

    Read more
    Rest is Healing: Tips for Better Sleep Image

    Tuesday, September 16, 2025

    Rest is Healing: Tips for Better Sleep
    Posted by Rebecca Strong

    Disrupted sleep is common with chronic illness, especially with pemphigus and pemphigoid.

    Read more
    Meet Ramesh Swamy, New IPPF Board Chair Image

    Sunday, August 24, 2025

    Meet Ramesh Swamy, New IPPF Board Chair
    Posted by Anna Lane

    This spotlight was recently featured in the American South Asian Network (ASAN). When the IPPF named Ramesh Swamy its…

    Read more
    See more posts

    Support our critical patient services, research, advocacy, and awareness efforts today

    Ways to Give